WHO, WHAT, and HOW vs. WHY? (Now there’s a vague heading)

WHO, WHAT, and HOW vs. WHY? (Now there’s a vague heading)

I suppose this first one’s for me. I’ll take it.

Like every other wisdom-toting, hot-shot twenty-five year old, I have a story to tell. Perhaps coincidentally, as I find myself approaching the 6 year mark of paralysis (having confessed my spinal cord injury testimonial to sweet little old ladies, church prayer circles, pseudo-concerned college professors, and awkward first date subjects ad nauseam) I also find myself stumbling upon a platform. Regardless of its size or prominence, I have a platform. Not a platform of authority, reverence, or of fortuitous counsel (not yet the wheelchair-yoda I aspire to one day be), but one of interested and empathetic eyes that I may have never been privileged to reaching otherwise. Read more

Dating as a Teen With a Disability

Dating as a Teen With a Disability

Hi everyone! It is Isabella again! Today I would like to talk about what it is like to date and meet people as a teenager with a disability. It is hard to have self confidence when you are a teenager. Why is everybody so dang mean? It is really hard to have high self esteem in a world full of people putting you down constantly. Read more

The Cost of a Disability on a Marriage

The Cost of a Disability on a Marriage

Being married while dealing with disabilities on both sides is hard, extremely hard. I think I have made it clear that I love my wife more than life itself, but on those weeks of steroids for her treatments it’s like we need an exorcist. This for the sweetest woman alive! Steroid rage is real and it is not pretty. She will go from calm, to crying uncontrollably, to finally breaking dishes and anything within reach. Thank you Prednisone, you are making lives hell on a daily basis for millions of people. A friend of mine whose wife also has undergone chemo treatments calls it, “Steroids, I swear to God this woman secretly hates me”. It’s that bad, but I love this woman, no matter how many dishwashers she kills. That is only dealing with one side effect. Read more

I Do Have Sex With That Man and Thank You for Asking!

I Do Have Sex With That Man and Thank You for Asking!

WARNING: This article contains adult content and may not be suitable for younger readers.

Everyone and their grandmother has an odd fascination with my sex life. This is not only offensive, but annoying as all get out. Do you have sex? Yes and it’s good too! I’ve had men ask me with the intention of “fulfilling that need” that is obviously missing in my life. I’m not sure how you missed the baby on my hip screaming in your face to back off. What is wrong with these people? First of all I’m married so you need to respect that. I’d really like to know why it is always some creepy fugly guy who you just know lives in his parent’s basement too. Point blank no! Not even if I was single and you were the last human being on earth, I still would not have sex with you! I have standards for men and they are quite high. Why are you asking about my sex life? Why??? Read more

My Definition of Love

My Definition of Love

What is love? If you ask my wife she will tell you that love is not a feeling or something tangible, but that love is a verb or an act. To me love means acceptance without conditions or judgment. Obviously there are various types of love, but they all boil down to that basic principle. There is no but when it comes to love. For instance friends we had who were as close as family, but then we sustained an injury or long term illness and into the wind they vanished. I believe that if you truly love someone then you will always wish the best for them even if situations change and you go your separate ways. Read more

Pet Ownership for Those with Disabilities

Pet Ownership for Those with Disabilities

Owning a pet can bring great joy into your life as well as a good bit of responsibility considering that all living creatures require care and have needs to be met. Nonetheless there is a pet out there fit for everyone if you’re interested in an animal companion. Owning a pet also provides hidden health benefits such as lowering your blood pressure. They provide constant companionship and unconditional love. The question becomes what pet is right for you, your home, and your lifestyle. Cats and dogs are the most interactive of the popular pet choices so that is what I will be covering today. Read more

The Power of Words

The Power of Words

This is a tough topic. Do you ever feel like you are a burden because of your disability? Like you don’t deserve to be happy? Do other people ever make you feel that way? It can be tough to tell those people to shove their opinions, and strangers certainly have no problems giving them out. Too bad people don’t hand out kindness and encouragement that way. The world would be a much better place. Read more

Personal and Family Goals

Personal and Family Goals

Personal and family goals are a part of daily life in our home, so much so that they are on display to remind us of what we strive to achieve daily. It’s harder to ignore something or put it out of your mind when you see them displayed around your house. Some of our family goals are that we will be kind and respect that everyone has their own opinion. We will use our inside voices, even when angry, because being louder does not make you important. We will strive to appreciate our differences and find ways to include everyone in every activity. Read more

The 5 F Words in My Life

The 5 F Words in My Life

Faith, Family, Friends, Forgiveness, and F it.

I am thankful to have the foundation of those 5 F words in my life as they are all based on one thing and that is love for yourself. My life, attitude, and perspective have completely changed in this last 8 years since meeting my wife. She taught me the foundation of love and the 5 F’s in life. I felt blessed to have her not only as a friend, because while she was young at 28, she had lived through several lifetimes of pain and was the most positive happy person I had ever met. Her struggle would continue over the next 8 years of our relationship. She fell to her knees many times from the pain and weight of her world. That brings us to faith, as my wife always says when life knocks you onto your knees the Lord is saying you are in the perfect position to pray for his guidance. Read more

Perspective

Perspective

Welcome to lymphoma rounds 1 and 2. Words you never expect to hear in your lifetime. Your wife has cancer. Your wife has cancer again. Oh damn, remember that harmless lymphoma we said we couldn’t cure but could control? Well you see it transformed and she’s already had so much chemo and radiation that if this chemo doesn’t work she’s not going to live to see her daughter turn 1. Why the hell is this happening to our family? Read more