I'm Losing My Mind

I’m Losing My Mind

Today’s blog is not a fun or easy one to write. Back in January 2017 I was diagnosed with dementia most likely early onset Alzheimer’s disease and have been going slowly crazy since it happened. I’m only in my late 30’s and had no idea this would ever be a possibility in my life. I feel like my life is over. Read more

What Equality Means to Me

What Equality Means to Me

Hi everyone it’s Isabella! Today I want to talk about what equality means to me. Equality is more than having accessibility or equal pay. For me equality means respect in all parts of my life. If I can attain that then I will know I have truly achieved equality in my life. Read more

My Drug Addiction

My Drug Addiction

Drug addiction is not a problem that anyone expects to have to have deal with in life. Nobody wakes up one day and says hey I think today will be the day that I throw my life away. I know that I certainly did not expect this to happen to me, especially with my past, yet here I am today. It’s a tough subject, but an important one. Read more

Handling a Divorce Properly

Handling a Divorce Properly

We can not deny that marriages that have a disability or long term illness involved have a higher rate for divorce than those that do not. It is a simple, but unfortunate fact of reality. Dealing with these added issues is stressful, and sometimes love alone is not enough to overcome the stresses of life. I’ve seen messy divorces from hell that should have been cut and dry. I’ve also seen divorces go as smoothly as a knife through butter because those people chose to act like adults and keep their priorities in order without letting their personal anger get in the way of controlling them. It’s a matter of respect, and you should definitely have respect for someone that you at one point made a choice to dedicate sharing your life with. Naturally this does not apply to situations where abuse has been a factor in your marriage. You can not respect what has not been shown respect. Read more

A Letter For The Best Parents

A Letter For The Best Parents

My dad had written a really sweet blog to my sister Taylor and myself about what he wanted us to know about our disabilities and how he saw us as perfect. I thought it would be fun and nice to write one to my parents so they know what they mean to us. My parents are not perfect though because my dad is nuts and my mom is even more crazy. We still love them though. Read more

Why I'm Always Grateful

Why I’m Always Grateful

I get asked a lot why or how I can be so happy. The truth is that I’m not always happy and I definitely have my moments of bitterness at life. What you see is my being grateful for the life I have today. A life I never dreamed was possible as young poor kid growing up in New York. I didn’t grow up in what anybody would consider a good neighborhood. We were surrounded by gangs and drugs. We lived separately from my father while he was stationed elsewhere and spent summers together with a few short weeks with him during the school year. I’m grateful to see my children all day every day. My father is an alcoholic, my mother abused pain killers at the end of her life, and my twin was an addict who was killed from gang affiliated violence at 16. I’m grateful to never have taken drugs or felt the need to get drunk constantly to face life. I am grateful to have always had a dream to work towards since childhood and to have achieved it. That dream was taken from me with my accident, but I survived. I went from having my dream job and success to having every possible dream in my life come true despite my disabilities. Read more

All About Isabella

All About Isabella

Hi everyone it’s Isabella! Since I am writing blogs for you all I thought it would be fun to tell you a little bit about myself and my life so you can understand me a little more even though my dad and mom have already written about me. It makes me feel proud that my parents talk about my sisters and I so much. I love my parents a lot and they love us. I think my parents did a good job at raising me to know how to live a good life and will with my sisters too. My parents are very strict and my mom says it is because too many kids try to grow up too quickly. My friends say that my parents are very old fashioned because they have to meet my friends families before we can hang out and there has to be an adult there even though I am old enough to not need a babysitter. They say it is the world that needs babysitting Read more

Accessibility vs Ableism

Accessibility vs Ableism

What is accessibility in public? I’m headed to Target with my family and we’re shopping for clothes for the little ones. Handicapped parking? Yes, we found a space. My wife is wearing the new peanut in a wrap. Big girl Tater tot is secured in my lap.  Bella is lost in her own world listening to the Biebs on her iPod, because parents suck, holding mom’s hand as we make our make our way to the door through the most dangerous parking lot known to man. Curb ramp. Check, we have succeeded in entering hell. Read more

A Conversation With My Daughter's Boyfriend

A Conversation With My Daughter’s Boyfriend

I was sitting and talking with Bella’s boyfriend and he had several questions to ask my about injury. This young boy has recently turned 17 and is quite mature for his age. He asked me if I could describe the feeling of paralysis and I had him do the finger experiment. He asked about various sensation levels. He asked if it felt anything like you’d experience with a limb falling asleep with the pins and needles sensations. Before all of this he asked me if it would be okay to have an open conversation about my SCI. He has a genuine fascination with all things medical and wants to follow in his mother’s footsteps and become a veterinarian. Read more

My Definition of Love

My Definition of Love

What is love? If you ask my wife she will tell you that love is not a feeling or something tangible, but that love is a verb or an act. To me love means acceptance without conditions or judgment. Obviously there are various types of love, but they all boil down to that basic principle. There is no but when it comes to love. For instance friends we had who were as close as family, but then we sustained an injury or long term illness and into the wind they vanished. I believe that if you truly love someone then you will always wish the best for them even if situations change and you go your separate ways. Read more