5 Ways to Get Cool FAST with a Spinal Cord Injury

5 Ways to Get Cool FAST with a Spinal Cord Injury

The human body is a marvel. Somehow it ended up with the ability to cool itself via sweat, but when you have a spinal cord injury this ability is turned off. Many are shocked to hear this, but when you have a spinal cord injury, you really can no longer sweat. Not surprisingly, this can cause some pretty gnarly health scares. Read more

Overheating After an SCI

Overheating After an SCI

Before my accident I knew almost nothing about spinal cord injuries. I definitely did not know that you lost the ability to sweat below your level of injury. While it’s weird at least my wife can’t complain that my feet stink. This was definitely an issue before my accident. Boots are not breathable and the funk was strong in this one. Read more

A Wheelchair-User’s Self-Esteem Maintenance Guide

A Wheelchair-User’s Self-Esteem Maintenance Guide

Body positive messaging is more popular than ever, and it’s about time. For too long wheelchair-users have only felt like they were less than. It’s not easy rolling around this world looking up. As a wheelchair-user for many many years, I know that maintaining a decent self esteem is difficult. Read more

Uncertainty in These Times

Uncertainty in These Times

I’ve been through a lot these past couple of months. Everything from personal matters such as losing my childhood friend and going on my first business trip to matters concerning my CADI waiver and disability services, new PCA services and ILS services hanging in limbo and then adjusting to new and hopeful changes.  Read more

This Change

This Change

I have been through many dramatic changes in the last decade of my life both extremely happy and heartbreaking. I made it through each one, but I’ll be honest and say I have no idea what I am supposed to do with this news that I have dementia. Read more

Why I Am Ok Not Getting to be My Partner’s #1- Self-Care Trumps all in my Relationship

Why I Am Ok Not Getting to be My Partner’s #1- Self-Care Trumps All in My Relationship

My partner, Riley, had a spinal cord injury 8 years ago. As a result, he is a C5/6 quadriplegic. This article speaks to how that reality impacts certain aspects of our relationship. Read more

Your Time Is Worth It

Your Time Is Worth It

As a young whippersnapper pursuing a healthcare profession, I don’t spend a great deal of time initiating conversations revolving around dollars and cents. I tend to focus more on people, intervention outcomes, and qualitative progress opposed to quantitative monetary benefit. But, as I continue to grow and matriculate into what is oft referred to as the “real world”, I learn more and more about the precedent put on the monetary value of time, the monetary value of an investment, the monetary value of…well, really anything. I’ve grown to appreciate its role in the pursuit of one’s goals. Read more

A Day in My Life With My SCI

A Day in My Life With My SCI

NOTE FROM THE EDITOR: Katy has unfortunately been going through one health complication after another for the last few months. Last night, she shared this update on her Facebook page. It accurately depicts what it’s like to live with a complicated high-level Spinal Cord Injury, and she has graciously agreed to share it with all of you. Please keep her in your thoughts during this time. Read more

Body Shaming People with Disabilities

Body Shaming

Body shaming is a huge problem in our society and it comes in multiple forms. The fact is that no two people have the same shape, nor were we meant to all look the same. You’re too tall, short, fat, thin, dark, light, or have a physical difference. I don’t know why society feels it is okay to make people think there is something wrong with them. Being a cancer patient I am underweight. I’m also naturally extremely small to begin with. When I’m out with my family and we stop to eat I am very particular because I have to be that way. I have celiac disease and eating any gluten will cause my intestines to swell shut from my stomach. I won’t get into the details, but it’s pretty darn gross and extremely painful. This condition will last for days all from eating one cracker or piece of bread. I’m also a vegan and my food options are limited by choice. There is nothing worse than standing in line and hearing someone behind us snickering about how I’m clearly suffering from an eating disorder and need to eat a cheeseburger. No! I’m sorry that my small stature offends some people. I understand that it has been a problem in society for people who are overweight to feel judged and teased. How is anyone fixing the problem by telling me I have an eating disorder? I’ve often been told that men want meat and not a bone. Men want curves on their women. Hey people, I still have curves, they are only smaller. Read more

Remembering the Why of Standing

Remembering the Why of Standing

I was talking with a mom last week during the IFSP (Individualized Family Service Plan) meeting, about getting her child into a stander now that he is approaching 9 months old. This little boy has increased tone in his extremities with decreased head and trunk control, very limited use of his arms and hands yet. Mom knew about standers from her private therapist; in fact they were also planning to try one in private therapy that same week we discussed standing. Mom was all ready to try one, but wondered what the stander was going to help him do. Read more