A Day in My Life With My SCI

A Day in My Life With My SCI

NOTE FROM THE EDITOR: Katy has unfortunately been going through one health complication after another for the last few months. Last night, she shared this update on her Facebook page. It accurately depicts what it’s like to live with a complicated high-level Spinal Cord Injury, and she has graciously agreed to share it with all of you. Please keep her in your thoughts during this time. Read more

Being a So-called Broken Record

Being a So-called Broken Record

Sometimes I fear sounding like a broken record whenever I talk about ableism or disability issues in general, even though it pertains to so much of my professional and personal life. Disability factors into my life financially in many ways. Not only do I write about it here as a contributor, but I also write about it as a poet. Sometimes I feel a little…trapped. I know that I have a different perspective than that of my peers and perhaps I can encourage them to see things through a different lens. Even if it’s just for a moment. I fear talking about the “positive” too much because I worry about the potential of inspiration porn. I worry about focusing on the negative so much that my audience will mistake me for bitter as opposed to angry. Newsflash: I know I’m angry. Like Bruce Banner, I’m angry all the time. There is nothing wrong with that. Read more

I'm Losing My Mind

I’m Losing My Mind

Today’s blog is not a fun or easy one to write. Back in January 2017 I was diagnosed with dementia most likely early onset Alzheimer’s disease and have been going slowly crazy since it happened. I’m only in my late 30’s and had no idea this would ever be a possibility in my life. I feel like my life is over. Read more

With Wheelchairs, Awkwardness Abounds

With Wheelchairs, Awkwardness Abounds

I’ve always wanted to be liked, but after my injury that became a lot more difficult. The reason being – the wheelchair. No one is comfortable around them, not even dogs. Most people and animals have an off-putting reaction to a wheelchair. Typically it’s pity, fear (expressed by children, old people afraid of the speed of my wheelchair, little dogs), annoyance (on the bus, “Oh no it’s a wheelchair again”) or the one that bothers me the most, awkwardness. Read more

What Equality Means to Me

What Equality Means to Me

Hi everyone it’s Isabella! Today I want to talk about what equality means to me. Equality is more than having accessibility or equal pay. For me equality means respect in all parts of my life. If I can attain that then I will know I have truly achieved equality in my life. Read more

Body Shaming People with Disabilities

Body Shaming

Body shaming is a huge problem in our society and it comes in multiple forms. The fact is that no two people have the same shape, nor were we meant to all look the same. You’re too tall, short, fat, thin, dark, light, or have a physical difference. I don’t know why society feels it is okay to make people think there is something wrong with them. Being a cancer patient I am underweight. I’m also naturally extremely small to begin with. When I’m out with my family and we stop to eat I am very particular because I have to be that way. I have celiac disease and eating any gluten will cause my intestines to swell shut from my stomach. I won’t get into the details, but it’s pretty darn gross and extremely painful. This condition will last for days all from eating one cracker or piece of bread. I’m also a vegan and my food options are limited by choice. There is nothing worse than standing in line and hearing someone behind us snickering about how I’m clearly suffering from an eating disorder and need to eat a cheeseburger. No! I’m sorry that my small stature offends some people. I understand that it has been a problem in society for people who are overweight to feel judged and teased. How is anyone fixing the problem by telling me I have an eating disorder? I’ve often been told that men want meat and not a bone. Men want curves on their women. Hey people, I still have curves, they are only smaller. Read more

My Drug Addiction

My Drug Addiction

Drug addiction is not a problem that anyone expects to have to have deal with in life. Nobody wakes up one day and says hey I think today will be the day that I throw my life away. I know that I certainly did not expect this to happen to me, especially with my past, yet here I am today. It’s a tough subject, but an important one. Read more

Surviving the Aftermath of Abuse

Surviving the Aftermath of Abuse

Warning: This post contains information about sexual assault that some readers may find disturbing. Rates of abuse are higher among those living with disabilities. In an effort to raise awareness about this very serious issue, Jessie has written a special series on sexual abuse that will be published over the coming months.

As survivors of sexual abuse we have been violated in the most inhumane of ways. Our dignity, power, and a piece of our minds was stolen with our peace of mind. We are forever left wondering why us. We wonder what we could have done differently and that answer is nothing. Predators do not need a reason, only a target. Read more

Handling a Divorce Properly

Handling a Divorce Properly

We can not deny that marriages that have a disability or long term illness involved have a higher rate for divorce than those that do not. It is a simple, but unfortunate fact of reality. Dealing with these added issues is stressful, and sometimes love alone is not enough to overcome the stresses of life. I’ve seen messy divorces from hell that should have been cut and dry. I’ve also seen divorces go as smoothly as a knife through butter because those people chose to act like adults and keep their priorities in order without letting their personal anger get in the way of controlling them. It’s a matter of respect, and you should definitely have respect for someone that you at one point made a choice to dedicate sharing your life with. Naturally this does not apply to situations where abuse has been a factor in your marriage. You can not respect what has not been shown respect. Read more

Power-Assist Virgin Diaries Saga 1: Tailwind Power Assist

Power-Assist Virgin Diaries Saga 1: Tailwind Power Assist

For any quadriplegics out there wondering what it’s like to finally try a power assist tech on a manual wheelchair after years of using a power wheelchair, this blog post is for you. I have been using a power chair for over 20 years and am looking into getting a power assist manual wheelchair. The time is nigh to finally add better mobility to my life. Read more