Posts

Why I Go to Therapy: It Helps

Why I Go to Therapy: It Helps

This week we’re sharing another post by Jessie+Luke‘s oldest daughter Isabella.

Hi it is Isabella again! Today I want to talk about my experience with therapy. I started going to see a therapist after my mom got sick and it helps me a lot. Sometimes I do not want to talk to my parents about my feelings because I do not want to add to their stress. It hurts a lot when you have a sick mom or dad. I could not do anything to help make her better. I sat and watched her getting sicker from chemotherapy and I did not understand why the medicines made her sick when it was supposed to make her better. I watched my dad get sadder every day because of it. I thought she was going to leave me and I cried whenever I was alone in my room. My dad cried a lot too and that made it even harder for me to think that she was going to get better. Read more

Lisa and Easton

Introducing Lisa and Easton!

Hello everyone!

My name is Lisa Zietlow. I just turned 34 years old. I have a “typical” 6-year-old son named Kaiden and a “non-typical” 18-month-old son named Easton. Read more

The Special Needs Mother Who Wasn't

The Special Needs Mother Who Wasn’t

Several months ago, a rather popular blog was posted about what defines a special needs family. While I respect the author’s opinion that special needs should be defined by something in the family requiring additional attention, I was left in complete shock at the acceptance and encouragement that this blog received. How could anyone judge what they do not see at home? How could anyone assume that a child who has lost a parent does not qualify as special needs? Special needs are not only physical but also psychological, and intellectual. Autism is not a physical disability, but would anyone question that autism is not a special need? Autistic children suffer from a form of retardation. That itself is an intellectual disability even when taking away the social aspects. As a psychiatrist who works as a therapist with abused children, a parent who has special needs children, and as a parent that has that child that lost a parent, I found this blog extremely upsetting. I respect the opinion to say there should be a need. However, it should not be assumed that those children do not suffer any number of emotionally driven mental conditions that the mother did not disclose to you upon saying there wasn’t a household disability before her husband’s passing. Read more

Dealing with Multiple Special Needs in a Home

Dealing with Multiple Special Needs in a Home

Living with any type of disability is never easy. When it comes to dealing with a house full of disabilities it can be pure chaos. My husband is a lower level paraplegic, suffers from a TBI, and has severe PTSD with generalized anxiety disorder . My oldest daughter is a high functioning autistic and is also a young teenager. There is a special type of angst that comes from parenting a teen and it has nothing to do with any disability. My toddler was been left unable to speak due to throat cancer she suffered from as a baby, I myself have MS, scleroderma, celiac’s disease, and to top it all off I am fighting against cancer once again. I am also an abuse survivor and struggle with severe depression at times. Did I mention we also now have a new baby? Talk about a life full of unexpected surprises! What can you can do about it? Absolutely nothing except to enjoy the good times you have together as a family. Read more

National Aquarium | Accessible Fun for the Whole Family

National Aquarium | Accessible Fun for the Whole Family

Recently my family and I took a trip to the National Aquarium in Baltimore. Outside of the parking situation this place is great! Parking in general is a pain in the butt in the Inner Harbor area but there are plenty of lots available for the public to use that include accessible spaces. You will pay to park anywhere so suck it up and get ready to have some fun! Read more

Drawing the Line on the Definition of Special Needs

Drawing the Line on the Definition of Special Needs

I stood a bit perplexed evaluating what toys that my child with special needs would have any hope of being able to activate and play with this year when another mother approached me. I had assumed she was going to comment on all the hottest toys of the holiday season, or complain about a super high price tag for the smallest matchbox car, or that I’d somehow have to find a way to explain why I couldn’t just pick out any toy for my child with special needs who was non-verbal and in a wheelchair next to me. But instead she decided to start a conversation by saying she knew what it was like to be a special needs family. Super I thought; someone just like us who understands this journey… until she explained. Read more

Complete Guide to Special Needs/Educational Apps

With over 300,000 apps it’s easy to become overwhelmed by the number of app choices. It’s also easy to spend a small fortune on a lot of useless apps. As a special needs parent I wanted to get right to the “good stuff” and figured you did too. This guide breaks down the best of the apps by skill set so you can easily find and buy apps that most benefit your child. Included are apps for iPad, iPhone, iPod touch and some Android apps. Get started right now by clicking on a category. Read on to learn How to pick great apps and What’s on my iPad? Read more

adaptive bike for kids with disabilities

Therapeutic Adapted Biking

School has started and with that we have some cooler weather. Fall is a great time to think about getting outdoors for a fun family outing. When you plan a fall outing, consider getting some exercise while you go out to enjoy the fall leaves. A bike ride with the kids can be a wonderful way to experience the fall weather. In the northern states we are experiencing some cool days, perfect for a ride along one of the many trails we have.

There are so many options available for biking with kids and special needs. The most common bike is an adapted three wheel bike that can provide a range of options from minimal support or more control with trunk and leg support options depending on the child’s needs. There are side by side bikes that allow parents to sit next to their child and bike along with them; in this case the child does need to be closer to the size of an adult body to reach the pedals and participate in the pedaling action. Read more

Superhero Play for Kids of All Abilities

My two boys love superheroes. In fact, the past three Halloween’s, my 5 and 2 1/2 year old have been Superman, Spiderman, another Spiderman, Batman and Robin. So there is no doubt why the “superhero” theme was fresh on my mind for our last marketing EasyStand Bantam “Standing Superhero” mailer. It was not until recently that I discovered on one of my new favorite parenting/teaching blogs, Teacher Tom, that there was a lot of talk in the parenting and teaching communities about superhero play. I was surprised to learn that some schools actually ban it. It seems to me that when managed, superhero play teaches about values, respect, empathy and safety – while being fun. Here are some ideas on how to make it a learning experience, as well as some adaptations for your children with special needs. Read more