Posts

The Tissue Box

The Tissue Box

The tissue box.

It just a part of the room.

Yet you know why it sits there. Read more

What I Want People to Remember

What I Want People to Remember

Hi everyone it’s Isabella! Lately I have been so completely wrapped up in my own pain and hurt that I have forgotten that my dad is in pain too. I can’t pretend to understand what he is going through and he can’t pretend to understand how he is hurting us. I don’t want to forget the good things about life and let it hold me down so I am going to write some good memories of my dad to share, but also to remind myself. No matter how rough life gets I’m going to shove it right back. Read more

Graduation Caps

Cloud Nine

I cried. Tried to stop it. Was certain I could hold it in. But, I cried.

Roa and his proud parentsThe crowd of happy parents, grandparents, and family looked on as these sweet,young Kindergarteners finished their first official year of school at a mini-graduation ceremony. It was cute little program,..dressed in their best with black gowns and home-made crowns, Roa’s class sang, spoke, and walked up to accept their certificates.

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Shuttle Ride Between CP Land and World Typical

Shuttle Ride Between CP Land and World Typical

As I feed Roa his breakfast, Gunnar is giving me an art history lesson about Picasso’s Blue Period.  Roa is 6, Gunnar just turned 4 last week.  Roa has cerebral palsy. Gunnar has typical…yet frightfully advanced in some areas… development.

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Busy Special Needs Family Routine

Back to School: The Return of a Hectic Schedule

Hazy Shades

Time time time…. See what’s become of me..

Remember that eighties song? So fitting for my life these days. I thought when Roa started Kindergarten and Gunnar went to preschool a few hours 3 days a week, I would be swimming in a giant pool of time! Not so much. Read more

Stuck Between CP Land and World Typical

Living in Both CP Land and World Typical

The Balancing Act in a Time Warp

I left Gunnar’s preschool orientation, head swimming with so many thoughts.

I’m such a fake, phony, hider, traitor to my Roa. He is off at kindergarten orientation with Daddy while I’m here, in the easy life of World Typical. He has face after smiling face getting up close and personal to say hi and talk about his speech, his movement, his toilet training… right in front of him, while I can sit back with all these other parents and watch our 3-year olds play and explore in this classic education classroom. Read more

First day of school of Special Needs Boy

Diary of a Kindergarten Mom of a Special Boy

As school starts across the country, I watch as friends post pictures taken sending their little ones…babies, off to Kindergarten. Before I was a parent, I always thought, why the misty-eyed, tearful reaction? What a great milestone to celebrate! Entrance into school to make friends, learn new things, and explore that developing personality! Now, as my own son gets ready to start his elementary school career, I get it. It’s emotional watching your not-long-ago-baby heading off to independence. Read more

Terrific Kids - Cerebral Palsy

Terrific Kids

The conversation in the car was inevitable. I had been waiting on it for almost 12 years —since the triplets began kindergarten as a matter of fact. But expecting a conversation and being prepared for it are two completely different things.

“Mom, am I horrible that I am so tired of people telling me that looking at me reminds them that their problems aren’t so bad?” Mason, 17, asked. “I know they mean it in a good way. ‘You overcome so much, blah, blah, blah,’ but still.” Read more

Individualized Education Plan

The Season of the IEP

We walked into the building holding hands and breathing deep, unsure of what the next hour would bring. It’s that time of the year at school. End of the year testing, planning for the next, and the IEP (Individualized Education Plan) meeting. The last two years, no worries. We had a great team of teachers and therapists who knew Roa and his abilities. They were amazing at including him in the preschool routine and adapting things to suit his needs. But this year, the game has changed. Roa is entering Kindergarten this fall. He is changing teachers, therapists, bus drivers and school building. This IEP meeting was entered with a touch of anxiety and a pinch of apprehension. Read more

Concussion MRI

Concussion 101: The Disabling Effects of a Concussion

Concussions have become the latest health topic in the media. How can parents become educated to recognize a concussion, and know where to go for the best care? How do you prevent disabling symptoms from persisting with a concussion? Knowing what to watch for is the best start to preventing long-term issues. Most concussions resolve themselves in 10-14 days, with a small percentage causing persistent, even disabling symptoms. Experts can’t seem to predict why some people have longer recovery, although the number of concussions a person has experienced can certainly be a factor. Read more