I was sitting and talking with Bella’s boyfriend and he had several questions to ask my about injury. This young boy has recently turned 17 and is quite mature for his age. He asked me if I could describe the feeling of paralysis and I had him do the finger experiment. He asked about various sensation levels. He asked if it felt anything like you’d experience with a limb falling asleep with the pins and needles sensations. Before all of this he asked me if it would be okay to have an open conversation about my SCI. He has a genuine fascination with all things medical and wants to follow in his mother’s footsteps and become a veterinarian. Read more
I write this blog tentatively, as I still battle the lessons I’ve learned about what it means to lose control. What I mean by that is suffering a spinal cord injury lead me to learn how little control we have over the circumstances in our lives, in many various aspects of what used to be a simple life. Read more
One of the harsh realities of living with a spinal cord injury is the loss of sensation. When people think of paraplegics and quadriplegics, they usually think about how we can’t walk or move our arms. But the loss of sensation for many is by far the much worse side effect of paralysis (and you can count me as one of these people). Read more
The pleasure principle can be hard to find after a spinal cord injury. While some with spinal cord injuries still have sensation of their lower extremities (a little factoid many don’t know), there are still many that cannot; and I’m in that camp. When you have extremely decreased sensation in your body, it becomes a scavenger hunt finding a new place that gives you pleasure. Read more
For years I’ve been blogging about the much ballyhooed Project Walk, the “new” spinal cord injury rehabilitation center that’s all the rage and spreading across the country. They give those with new injuries an opportunity to continue their rehabilitation, but I truly never thought I would get an opportunity to try it out myself. Read more
Currently, I’m considered incomplete motor and sensory, which means I have some feeling and movement below the level of my injury. In Part I, most of my post was about the feeling that I have throughout my body. I explained my injury level along with what I can feel despite being a C-1 C-2 quadriplegic on a ventilator. Now I’m going to focus in more on my movement. Read more
Really smart kids can be so annoying. Mainly because they can be so – correct.
One of my favorite high school freshmen is due to have his wheelchair adjusted for growth because like so many adolescents out there, he went and grew. After our twelfth friendly chat about his posture this school year, I suggested we speak with the seating people about some additional chest support. Then, as long as we were talking to them, maybe we should inquire regarding hip guides, because as he was leaning into his left lateral trunk support, he had a tendency for his seat to slide to the right. The crazy kid had the audacity to start questioning me. “If I need these things, why didn’t we get them in the first place when the chair was new?” Read more