Let me blow the cobwebs off of here and see if I can remember how to properly blog. It is hard to believe that in addition to writing just one single article for EasyStand, I only posted two real updates on my personal blog for the entire year of 2015. Heck, even my Help Katy back to rehab Facebook page has taken a backseat, along with my personal blog and the EasyStand articles. Beginning in January 2015, I have encountered many struggles and setbacks that have unfortunately taken precedence in my life over other obligations, such as writing or painting or anything that required making adult decisions. It was all just too much to handle that part of me just completely shut down. I was beyond overwhelmed by my life and the never-ending obstacles. Spinal cord injuries are exhausting: physically, mentally, and emotionally. Read more
I’ve done it at movie theaters, in restaurant booths, on park benches, onto couches at a party, definitely on a beach chair…wait? What do you think I was talking about here? Eh-hem…I’m referring to a certain transfer many people with spinal cord injuries do. It’s a thing and I’m here to talk about it. Read more
The heat is finally on again this year, and oh Lordy does it seem to be getting hotter every year I’ve been paralyzed. With icecaps melting and record highs already happening across the US, I couldn’t think of a better time for a brand new list of items to help you stay cool. Read more
Darlene was a horse breeder and trainer before a horseback riding accident left her with a C-4 incomplete spinal cord injury. However, being paralyzed from the neck down has not stopped her from being independent. She uses a wheelchair that allows her to drive and adjust her chair with her mouth. She has been injured for five years now but is determined to stay active. Since her accident, she has been traveling over an hour multiple times per week to her therapy sessions at Beyond the Chair. Read more
Henderson H. is a war veteran who was injured in a motor vehicular accident several decades ago. He is now a C5/C6 incomplete spinal cord quadriplegic who has a hard time sitting and standing in an upright position. Despite his limitations he remains very positive and is dedicated to leading a healthy and active lifestyle. Henderson also suffers from heterotopic ossification (HO) which requires him to increase weight bearing actions. Read more
Being paralyzed is no joke, it’s no living Hell either (contrary to popular belief). I have a pretty great life despite the whole quadriplegia thing. But I won’t lie – there are days when it gets really hard. Maybe it’ll be a flat wheelchair tire or a PCA not showing up that sets it off, but there are moments where I don’t think I can carry on one more day. It can get that bad. Read more
It gets tiring being judged for this wheelchair I’m hauling ass in. But when you’re in a society where being disabled is the minority, it’s bound to happen. Humans are more comfortable being around what’s “normal” (well most are this way). When you fail to fall into their “norm,” you make them uncomfortable, hence being judged. It’s an unfair gut reaction. Read more
Throughout life you will learn
that sorrow will not remain.
You will see that it is
like a butterfly emerging
from its cocoon to make way
for greater things.
When a caterpillar spins a chrysalis, does it know its life is going to change and that it’s going to turn into a beautiful butterfly? When a baby is born, does it know the path that it’s going to live and the life-changing moments that may occur? Change happens every day whether it is good or bad. People die, give birth, change jobs, graduate school, etc. Some changes are small while others are life-changing. Like an accident that changes you from an active teen to being paralyzed and in a wheelchair. Read more
Dating with a Disability
“For my interpersonal communication class I have to write a personal ad for myself. I’ve never done one before, so I’ve been searching the Internet to see what other people have written. I have to say, I found some interesting people out there. I’m seriously considering going on one of those dating websites. Not that I’m really looking for anyone right now, but it would be kind of interesting to see how it works. I’ve heard of many people meeting on the Internet and actually getting married.
The only thing I’m worried about is if no one responds or tries to contact me. I mean, there aren’t many people who would actually seek out a quadriplegic on a ventilator. The statistics for me finding someone who can see past my disability are low. This is one of the things I struggle with the most. The future and what it holds. I’m trying to be optimistic though. I don’t really tell a lot of people this, but it’s easy to talk to a computer because it doesn’t talk back. It’s hard to explain these feelings to other people. I’m sure there are other quadriplegics or people with disabilities who feel the same way.”
I have 24/7 nursing care because of my trach and ventilator. If my injury was any lower, I wouldn’t have nurses. Many times I’m glad that I’m on the ventilator so that I can have nurses to do all the care that comes along with being a quadriplegic. I don’t think I would be as healthy or come as far as I have without nurses. On the downside, I’m never alone. This is one thing that I struggle with. Even if I’m alone in my room, there is always someone within hearing distance of me in case something happens. Read more