Posts

A meaning among many words

A Moment Among Many Feelings

As I laid there staring at the ceiling, listening to machines beeping and people screaming, I was worried that I may never be where I was before. I had made it through this situation, and hoped that nothing like it would ever cross my path again. Laying there made me realize that there’s more to life than just going around pretending to be the one person you’re not. It made me think about my past actions, and the person that I have now become. I desperately wanted to realize who I was in this world, where I fit in, and why this had happened to me. Read more

Geese Flying South

Silly Mother Goose!

Sometimes I sit down to this blank screen and just start to type. I start with just my current thought and then relate it to my life as a mom to Roa. You, who have followed my ramblings for a while now, probably recognize that. This is one of those non-planned moments of blogging. One of those times, you see my mind’s wheels a-turning! Read more

Accessible Home Cost

The Cost of an Accessible Home

Building a new home…not all it is cracked up to be. Sure, I liked picking out fixtures, flooring, and lights. It has been exciting to see our vision brought to life and we are excited for a more open barrier-free space for Roa to live.

Yet, it has been a while since I last posted about our handicap accessible home build with good reason. This house building is such a rollercoaster of ups and downs that it is somewhat stressful to talk (or write) about. We have had set backs due to our blueprint plans not being acceptable to a neighborhood association and having to find a workable flat lot elsewhere. We have a large amount of setbacks due to the ridiculous long, frigid, snowy winter that made the building process slow. We have had set backs due to the cold, rainy spring that leaves the frost in the ground and renders concrete pouring of our garage and driveway impossible. Now, we are dealing with our most frustrating setback. The appraisal of our home is LESS than the amount that we put into it! Read more

Accessible Playground

All-Inclusive Playground Coming Soon to Twin Cities Area!

How exciting is this news parents? I was surfing the web and came across a few articles about a new playground coming to Woodbury, Minnesota. This new structure will be 15,000 sq ft and will provide children of all abilities the chance to play together and make new friends! The playground will be known as Madison’s Place and will be built alongside of the Bielenberg Sports Center Complex. The playground is being funded by the Madison Claire Foundation and local area businesses. Read more

Friends having coffee

The Lonely World of Special Needs Parenting

Only Human

The ad in the paper reads “Girls Night Out”. Special promotions, door prizes, dinner specials for you and all your gal pals. Sounds like fun! If I only had some pals.

I used to have friends. High school, college, even through my years as a teacher I had numerous comrades. Yet, as it goes for most, you relocate, gain different interests, or change in the time of life. Eventually some friendships fade.

I have friends I keep in touch with via Facebook, occasional phone calls, and annual Christmas cards. A couple times a year, I am invited to a birthday party, a dinner outing, or an “I’ll-host; you-buy-so-I-can-get-free-stuff” party. That is the extent of my friendships right now. Period. Read more

Special Needs Children and Pets

Pets: A Special Needs Mom’s Best Friend

Fur, Fin, or Feathers

I listen to the sounds of Roa’s wild giggling coming from the living room as I finish brushing my teeth and getting ready to start the day. Sigh…so nice to not feel quite so rushed with the need to get there for my boys. Gunnar is pretty self-sufficient, gifted with the typical three-year-old ability to play without assistance. Roa on the other hand, has to either lie on the floor or sit in his adaptive floor chair and be helped to play. Read more

Cerebral Palsy Winter Weather

Snow, Cold, and Cerebral Palsy

Through my eyes, the weather outside is frightful. Through Roa’s eyes, it’s a winter wonderland!

I don’t want to be negative about the snow. For goodness sakes, we live in Minnesota! I love to frolic in the white stuff- sledding, snowmen, and snow angels. Yet frolicking isn’t quite the word I can use to describe my snow play with Roa in tow. I bundle him up, dress myself, head out into the wintry white and slowly trump and trudge through the deep while prompting Roa to “lift his leg, help me walk, keep on going”… Similar prompts heard indoors, yet with the added joy of wind whipping our faces and snow sneaking into our boots. Read more

Bath Chair

Perfect Bath Chair for Children with Cerebral Palsy

Rub a dub dub, we all need the tub. Yet for some of us bathing is not an easy task. Children with physical disabilities need to be bathed while still getting a chance to splash and play in the tub just like any other child. Read more

Accessible Bathroom

Planning for Future Accessibility Needs

Mirror, Mirror on the wall… can I request a crystal ball?

If only it was that easy to see into the future and tell what Roa’s needs will be when he is age 10 or 18 or 25. Will he be wheelchair-bound the majority of his day? A power chair or will he manage his manual with independence? Will he require assistive technology to communicate? Will he use a walker to move throughout the home? Will he live with us through his adulthood? Read more

Physical Toll Cerebral Palsy has on Parents

The Physical Toll Cerebral Palsy has on Parents

As Long as I’m Able

As parents of a child with cerebral palsy, Bryan and I have frequently used the phrase, “as long as I’m able”. We knew we would continue to climb the ladders and go down slides with Roa, carry him up flights of stairs to change his play environment and keep up with his brother, and hold him up to bat at out of reach objects like the leaves in the trees or the basketball hoop. As long as our strength and stamina matched his rapid toddler growth, we would do this. As long as we were able, we would play tag or Duck Duck Goose with other children; one of us acting as his “walker” supporting him through movements as long as our energy allowed. Read more