Posts

Uncertainty in These Times

Uncertainty in These Times

I’ve been through a lot these past couple of months. Everything from personal matters such as losing my childhood friend and going on my first business trip to matters concerning my CADI waiver and disability services, new PCA services and ILS services hanging in limbo and then adjusting to new and hopeful changes.  Read more

WHO, WHAT, and HOW vs. WHY? (Now there’s a vague heading)

WHO, WHAT, and HOW vs. WHY? (Now there’s a vague heading)

I suppose this first one’s for me. I’ll take it.

Like every other wisdom-toting, hot-shot twenty-five year old, I have a story to tell. Perhaps coincidentally, as I find myself approaching the 6 year mark of paralysis (having confessed my spinal cord injury testimonial to sweet little old ladies, church prayer circles, pseudo-concerned college professors, and awkward first date subjects ad nauseam) I also find myself stumbling upon a platform. Regardless of its size or prominence, I have a platform. Not a platform of authority, reverence, or of fortuitous counsel (not yet the wheelchair-yoda I aspire to one day be), but one of interested and empathetic eyes that I may have never been privileged to reaching otherwise. Read more

Meet EasyStand's Newest Writer, Lauren Rosen, Physical Therapist

Meet Lauren Rosen, PT, MPT, MSMS, ATP/SMS!

I’m very excited to write my first official blog! I thought I’d tell you a bit about me and my plans for this blog. Feel free to speak up and tell me what you think and if there are any topics you’d like me to discuss (or not to discuss if you’ve heard it too many times). Read more

One Voice in a Choir

One Voice in a Choir

Sometimes when you’re a voice in a minority group you find yourself echoing the voices of your peers over and over and it grows tiresome. Don’t get me wrong, I’m not done being angry and I don’t think I ever will be. To be done with my anger is to, in my opinion, become complacent to inequality. I wear many hats though. I’m a writer. I’m an artist. I’m a friend. I’m a secret crush. Wearing all of these hats as many do, gets dull though. When I enter a room or try to book a venue for a reading or even attempt to toss out my name into the ring of conversation, suddenly I am not my own voice anymore. I’m not just the artist or writer which I am desperately working toward becoming. Suddenly, I’m a representative voice for all disabled people. Whenever I enter a room, everything I do or say is suddenly on behalf of a group. It’s a bit tiresome, but I do understand why this is. It’s why my voice is important, and why I’ve stressed the importance of speaking up and speaking out. Although, by the same token, sometimes I feel I lose my individuality. I’m constantly wondering whether or not I should hand over a written “DISCLAIMER: ALL OF MY THOUGHTS ARE MY OWN AND NOT EVERY DISABLED PERSON IS REQUIRED TO AGREE WITH ME” before discussing ableism and the insidious nature of it. I know that I have the power to either confirm stereotypes or destroy them, and just like a lot of my peers have echoed I can sense you staring. Read more

Self Care is a Balancing Act

Self Care is a Balancing Act

Every now and again I get questions from my peers with and without disabilities about what self-care looks like for me, and how I tend to all of my needs. Read more

Reflections

Reflections

There’s some things that I as someone with several disabilities need to give myself credit for. I touched on this briefly in my last article, about how sometimes little victories can cost a lot more than we in the disabled community realize. Now, keep in mind that when I talk about my struggles I’m not looking for a game of comparisons or to be someone’s inspiring gimp of the week. I’m just giving myself and my fellow crippled punks, credit where credit is due. There are days where I struggle to get out of bed, but I do it anyway. I transfer in and out of my wheelchair by myself despite the winces and groans that I may utter. When my hands refuse to listen to what I want them to do, I put on my socks. Read more

Meet EasyStand's Newest Contributor, Allycia!

Meet EasyStand’s Newest Contributor, Allycia!

Hello! I am thrilled to be a part of the EasyStand community and to write to you about my experiences. Here is a bit about me…  I am the camp counselor you send your kids to hang out with during the summer. I am the respite care provider that gives you a break. I am dedicated staff that shows up in the middle of the blizzard. I am the PCA that visits your kids once a week. I am the group home staff at the house down the street. I am the advocate that helps you navigate a seemingly impossible system. I am the care provider that truly cares. Read more

Jenni Taylor Speaking

Showcasing “Abilities” While Having a Disability

The word disability might mean something different depending on who you ask. To me, I consider myself as having a disability but I’m not disabled. Although I have limitations due to my injury, I have abilities as well. I have the ability to speak my mind; the ability to choose the way I want to live my life. I have the ability to access whatever means it takes to show people that “I am me” despite my disability. It doesn’t define who I am as a person or individual. Read more