Planning for the Unexpected While Going Out

Planning for the Unexpected While Going Out

Emergencies are called emergencies for a reason, because you never know when the are going to pop up. You should have a plan and be prepared to deal with the unexpected. I don’t quite understand why it’s called the unexpected, you know sooner or later it’s happening, but it always seems to have a way of happening at the worst possible moments. Perhaps it should be called the moment of “Oh crap! Dear God please not now” instead. Oh it’s happening, whether you want it to or not, so you might as well take a few minutes at a time and get things in order for them. What’s on my must have list as a parent, wife, and caretaker to get out of the house? Read more

One more time

One More Time…

This week, Jennifer’s husband Bryan shares his recent experience as a father to a child with cerebral palsy enjoying a weekend at the waterpark. 

One more time. I can do it one more time, I thought as I stood at the bottom of the stairs. Three flights up was the entrance to the water slide that we had just come down. It’s the only one he can do because we all ride in a raft and I can support Roa, who now stood in front of me squealing with joy from our last ride. Vicki, my sister in law, and Gunnar, my younger son, waited patiently. “Are you sure you can do this again?” Vicki asked. “Yeah, just need a minute to catch my breath”, I replied. Read more

Empathy: A Short Q & A With the Voices in My Head

So, let’s start this off with a nice light discussion of psychosocial issues.

I’m a big fan of Stephen King. Not because I’m a horror junkie, or because of any psychotic tendencies or mental illness that I’ve experienced following the trauma of spinal cord injury (side note: I acknowledge the unfortunate reality of this for some). Rather, I’m a proponent of, and relate with, the terror-evoking author’s acknowledgment of life’s yin and yang. Read more

How We Are Raising Empowered Kids

How We Are Raising Empowered Kids

People often tell me that Luke and I are doing a great job raising our children given their disabilities. This is extremely insulting as a parent. My children are special as are all children. My children are not different, but they are children with unique needs as well as abilities. People ask how we have managed to raise respectful well behaved kids given their conditions and ours. We are a special family, not because of special needs, but because of a special love. I believe that having a disability or illness can make you appreciate every blessing in life more than before, and we all need to count our blessings. I also believe children are life’s biggest blessing and greatest teachers. Children are born innocent, without expectations, without hate, and without entitlement. You need very few things to raise empowered children and none of these things cost any money. You need love, determination, patience, and most importantly the ability to express your feelings. These things apply to all children! We have plans of raising Olivia with the same techniques as we have with both of our older daughters who happen to have special needs. Read more

When Family Makes Coping With Injury Harder

When Family Makes Coping With Injury Harder

Don’t get my wrong, I love my parents. I just don’t always love having them around, especially post-disability. Read more

Technicolor Dreams in a Black and White World

Technicolor Dreams in a Black and White World

Sometimes I dream of the perfect blog post. And then I wake up. Read more

Holiday Gift Shopping

Holiday Gift Shopping

It’s the holiday season and that means shopping. What are some great gifts for that person in your life who has special needs? Are you finding toys that are appropriate and stimulating? Shopping can be a tough experience when there are sensory issues or limited functions involved. Read more

Holiday Shopping and Savings

Holiday Shopping and Saving

Holiday shopping means holiday crowds full of insanely bitter people who are willing to fight to the death over that last Barbie or Batman Lego set. What should be a fun time has turned into a battle of the strongest. The stores become so crowded that if you’re living with a wheelchair it can be nearly impossible to get through the masses of people to reach what you want or need. Of course we all want the lowest prices possible, but oh my it went from Good Friday to Black Friday for a reason, and that reason is crazy people. We do not do stores that day if we are able to avoid them in any way possible. The traffic is terrible and the lines in the stores are even worse.  Read more