Technicolor Dreams in a Black and White World

Technicolor Dreams in a Black and White World

Sometimes I dream of the perfect blog post. And then I wake up. Read more

Holiday Gift Shopping

Holiday Gift Shopping

It’s the holiday season and that means shopping. What are some great gifts for that person in your life who has special needs? Are you finding toys that are appropriate and stimulating? Shopping can be a tough experience when there are sensory issues or limited functions involved. Read more

Holiday Shopping and Savings

Holiday Shopping and Saving

Holiday shopping means holiday crowds full of insanely bitter people who are willing to fight to the death over that last Barbie or Batman Lego set. What should be a fun time has turned into a battle of the strongest. The stores become so crowded that if you’re living with a wheelchair it can be nearly impossible to get through the masses of people to reach what you want or need. Of course we all want the lowest prices possible, but oh my it went from Good Friday to Black Friday for a reason, and that reason is crazy people. We do not do stores that day if we are able to avoid them in any way possible. The traffic is terrible and the lines in the stores are even worse.  Read more

Lisa and Easton

Introducing Lisa and Easton!

Hello everyone!

My name is Lisa Zietlow. I just turned 34 years old. I have a “typical” 6-year-old son named Kaiden and a “non-typical” 18-month-old son named Easton. Read more

The Special Needs Mother Who Wasn't

The Special Needs Mother Who Wasn’t

Several months ago, a rather popular blog was posted about what defines a special needs family. While I respect the author’s opinion that special needs should be defined by something in the family requiring additional attention, I was left in complete shock at the acceptance and encouragement that this blog received. How could anyone judge what they do not see at home? How could anyone assume that a child who has lost a parent does not qualify as special needs? Special needs are not only physical but also psychological, and intellectual. Autism is not a physical disability, but would anyone question that autism is not a special need? Autistic children suffer from a form of retardation. That itself is an intellectual disability even when taking away the social aspects. As a psychiatrist who works as a therapist with abused children, a parent who has special needs children, and as a parent that has that child that lost a parent, I found this blog extremely upsetting. I respect the opinion to say there should be a need. However, it should not be assumed that those children do not suffer any number of emotionally driven mental conditions that the mother did not disclose to you upon saying there wasn’t a household disability before her husband’s passing. Read more

Routines Based Intervention

Routines Based Intervention

Routines based intervention (RBI); has become the new way to support families and children with developmental delays or disabilities for early intervention. But what does this really mean? I think physical and occupational therapists have evolved over the past few years in really getting into what this looks like. Read more

Stepping Back and Going Forward

Stepping Back and Going Forward

This week, Jennifer’s husband Bryan shares his thoughts about the unique experiences he has as a father to a child with cerebral palsy.

As we pulled up to the birthday party, my head churned with anxiety and despair about how the next couple of hours were going to roll out. The birthday party was held at a park complete with the climbing towers, walkways, tunnels, and slides. Something that every kid loves to do, including Roa. Over 8 years, I have spent many hours climbing around these multicolored fun factories; helping him climb steps and ladders, pushing and pulling him through tunnels, sliding with him down the slides, and doing my best to get him participating with the other kids. But not this day; I couldn’t do it. I had to admit it to myself and, worse, to him. Roa is now 8 years old and 75 lbs. He is a big, strong boy. I am 43 years old with all of the aches and pains that go with it. Most days, I can help him keep up with the other kids for a while. But this day, I couldn’t do it. Lack of sleep, too many aches and pains, unwillingness to experience the next couple of days living in pain…all reasons that entered into the decision. Also, kids are a little weirded out by a grown man crawling around a play set with them. Totally understandable. Read more

Handling Bullies - Online, in school, or in the workplace

Handling Bullies

Bullying is a serious topic that has gotten a lot of attention in the media recently. From adults at work who are too afraid to tell their boss, to the young teens in school committing suicide because they can’t take it anymore. This is a HUGE problem in our society. In the great age of social media bullying doesn’t require someone to grow a set of cojones to say it to your face. Type, post, and hurt an innocent person who has never even looked at you. It’s bullcrap people, and unfortunately those with disabilities are often on the receiving end of it. Let’s discuss ways to handle it. Read more

❤️Why Taylor is Awesome and You Need to Know About Her!!❤️

This week, Jessie+Luke‘s oldest daughter Isabella talks about her little sister Taylor and what it’s like for her growing up with a disability.

Hi it is Isabella again! My sister Taylor wants to share some things about herself with you and I am going to type it out for her. My little sister is pretty awesome. I am also going to ask her some questions so that you understand how people make her feel. My family is very important to me and it is important to me that I can be a good role model for both of my little sisters. Please remember that my sister is only little and she is being very brave to tell you about herself. She wants people to know that she is a normal little girl who survived extraordinary circumstances that left her only able to speak using her hands. When I am finished writing for her I am going to leave her a little note from me. We love you Tay Tay and I hope you like this when it is finished because I am going to try my best for you. Read more