This is a tough topic. Do you ever feel like you are a burden because of your disability? Like you don’t deserve to be happy? Do other people ever make you feel that way? It can be tough to tell those people to shove their opinions, and strangers certainly have no problems giving them out. Too bad people don’t hand out kindness and encouragement that way. The world would be a much better place. Read more
Personal and family goals are a part of daily life in our home, so much so that they are on display to remind us of what we strive to achieve daily. It’s harder to ignore something or put it out of your mind when you see them displayed around your house. Some of our family goals are that we will be kind and respect that everyone has their own opinion. We will use our inside voices, even when angry, because being louder does not make you important. We will strive to appreciate our differences and find ways to include everyone in every activity. Read more
Hi it’s Isabella! Somebody made me very mad and I would like to tell you about it. I posted a picture on my Instagram account of my dad, me and my boyfriend, and my mom. We were playing together and throwing horseshoes in our backyard with my boyfriend’s parents because it is a lot of fun. I even got one on the pole! My dad is really good at this game and he almost always wins every time. I also posted an old picture I found from when I first met my dad. We were playing miniature golf and I am terrible at that game. My dad really loves to play golf. My mom hates it, but we all like to miniature golf and even Tay can play! I wanted to share my picture and show my newer friends how little I was when I met my dad. I was 7 so he has been my dad for a very long time. Somebody commented on my pictures asking me how embarrassing is it to have a dad who is handicapped. I did not really know what that word means because we say a physical or intellectual disability. My mom said we don’t use that word because it is used as an adjective to describe a person like they are a disability instead of having one. I think that makes a lot of sense because nobody is their disability. I am not a disabled person but I do have a disability. I have autism and I am proud. Did you know that there are a lot of very famous celebrities who have disabilities too? There are and they are not ashamed of them. I think that it is really important for people to know that having a disability should not stop you from being anything you want when you are an adult. If you feel ashamed that means you did something bad or wrong. People did not do anything wrong or bad to be born special. Read more
Faith, Family, Friends, Forgiveness, and F it.
I am thankful to have the foundation of those 5 F words in my life as they are all based on one thing and that is love for yourself. My life, attitude, and perspective have completely changed in this last 8 years since meeting my wife. She taught me the foundation of love and the 5 F’s in life. I felt blessed to have her not only as a friend, because while she was young at 28, she had lived through several lifetimes of pain and was the most positive happy person I had ever met. Her struggle would continue over the next 8 years of our relationship. She fell to her knees many times from the pain and weight of her world. That brings us to faith, as my wife always says when life knocks you onto your knees the Lord is saying you are in the perfect position to pray for his guidance. Read more
Routines based intervention (RBI); has become the new way to support families and children with developmental delays or disabilities for early intervention. But what does this really mean? I think physical and occupational therapists have evolved over the past few years in really getting into what this looks like. Read more
Living with an SCI is hard enough right? No apparently it’s not, so let’s add a sick wife to plan and a pack full of small needy children to your life plan and see what kind of NBC comedy develops. It is definitely not easy to manage my own problems and my wife has been my number 1 supporter through this crazy journey. Then it became my turn, and honestly I wasn’t sure that I could handle all of the pressure. My own issues are often enough to push me over the edge of sanity dealing with my PTSD. I’ve already detailed my wife’s journey through cancer and now I will tell my side. Read more
September is Suicide Awareness Prevention Month. In an effort to end the stigma surrounding suicide and mental illness, we will be publishing several first hand experiences and promote information and resources available to those in need. Trigger Warning: This post contains details about mental illness and suicide attempts.
Since my accident a decade ago leaving me with a spinal cord injury and TBI I have been diagnosed with several mental illnesses that are far harder to deal with than any physical limitations. I have Generalized Anxiety Disorder (GAD), Post Traumatic Stress Disorder (PTSD), and I am also bipolar. This is not exactly the easiest of blogs for me to write, but I think that it’s needed. I do still feel some level of shame, guilt, embarrassment, or whatever the word is for it over having this label and that is part of the reason that I am writing it. There is a stigma attached to having a mental illness when it should be seen and treated with the same empathy, not pity, as any other medical condition. Read more
I was discussing discrimination and the negative perceptions that people with disabilities face on a daily basis from ignorant people. For me personally my paralysis isn’t the first thing people usually notice when initially meeting me. I suffered from a traumatic brain injury during my accident. Most people wouldn’t guess this from reading my blogs, except for the fact that I occasionally misuse a word or leave one out. Thank you spell check! I’m honestly not terrible at spelling, but typing is my arch nemesis. Big fingers and tiny keys do not make for best friends. First world problems right? Read more
Insomnia sucks. I’m not going to lie to you people. I get a little crazy after about day three of no sleep. It would seem that sleep is more important to your mental and physical health than I had originally thought. I start to look like a crazy drug addict on about day three. Before that you’d have no idea because I have an infant and apparently this is a natural state for all new parents. If I didn’t have insomnia and wasn’t used to being awake crazy hours this baby may have killed me by now. Poor kid got stuck with a crazy daddy, but we will make do. Read more