I was sitting and talking with Bella’s boyfriend and he had several questions to ask my about injury. This young boy has recently turned 17 and is quite mature for his age. He asked me if I could describe the feeling of paralysis and I had him do the finger experiment. He asked about various sensation levels. He asked if it felt anything like you’d experience with a limb falling asleep with the pins and needles sensations. Before all of this he asked me if it would be okay to have an open conversation about my SCI. He has a genuine fascination with all things medical and wants to follow in his mother’s footsteps and become a veterinarian. Read more
I’m talking with two of my friends about sneakers the other day when E points at my Adidas Stan Smiths and asks, “Hey are those comfortable?”
S and I glance at each other. As a paraplegic, my ability to feel anything from chest down is severely impaired.
I shrug at E. “I’d tell you if I knew.” Read more
I suppose this first one’s for me. I’ll take it.
Like every other wisdom-toting, hot-shot twenty-five year old, I have a story to tell. Perhaps coincidentally, as I find myself approaching the 6 year mark of paralysis (having confessed my spinal cord injury testimonial to sweet little old ladies, church prayer circles, pseudo-concerned college professors, and awkward first date subjects ad nauseam) I also find myself stumbling upon a platform. Regardless of its size or prominence, I have a platform. Not a platform of authority, reverence, or of fortuitous counsel (not yet the wheelchair-yoda I aspire to one day be), but one of interested and empathetic eyes that I may have never been privileged to reaching otherwise. Read more
It can be a strange world when you need PCAs. There is a lot of depending on people, their schedules and the stress of everyday things coming up that will without a doubt affect your life. Whether it’s their tire reading low, forgetting to set their alarm because they went on a bender the night before or simply having a kid that is sick, how you get in and out of bed everyday all depends on this stuff. Read more
The ability to walk was not the only thing that I lost in my accident as I also suffered a TBI. While I have regained most my abilities to function independently the two things that have been affected the worst were my memory and my speaking ability. My memory issues are a hard loss to handle, but I have found ways to compensate for it. I journal constantly and in great detail so that I can picture moments in my head. They may be recreations, but to me they are the only memories I have of many events. When I write blogs about things that I’ve been through with my wife’s journey through cancer many of the details come from my journals. We use a giant chalkboard to write down the important daily details for me to look at when needed. I set alarms on my phone when it’s time to get things done. I am the king of pictures and home videos of my wife and children. Having lost so many parents, grandparents, and children along the way the pictures and videos have become priceless. It is a lot of work, but for me it’s worth it. I want memories. I’ve learned to work around that part, but the speech issue is much more difficult to compensate for in daily life. Read more
A lot of things have been getting elevated lately. From restaurant fare to where people go on vacation, there is a trend out there that’s all about making things better than they have been; “becoming elevated” as they like to say, and I’m happy to report that it has finally hit the wheelchair spoke art scene. Read more
Don’t get my wrong, I love my parents. I just don’t always love having them around, especially post-disability. Read more
It all started with Tom. He was the recreation therapist at the rehabilitation facility I was living at. He was also a complete C5-6 quadriplegic and roughly 20 years older than me. I was 19 when I knew him, which put him around 39 years old, and despite nearing 40, Tom by far was the most independent and strongest quadriplegic I had ever met. Read more
Being married while dealing with disabilities on both sides is hard, extremely hard. I think I have made it clear that I love my wife more than life itself, but on those weeks of steroids for her treatments it’s like we need an exorcist. This for the sweetest woman alive! Steroid rage is real and it is not pretty. She will go from calm, to crying uncontrollably, to finally breaking dishes and anything within reach. Thank you Prednisone, you are making lives hell on a daily basis for millions of people. A friend of mine whose wife also has undergone chemo treatments calls it, “Steroids, I swear to God this woman secretly hates me”. It’s that bad, but I love this woman, no matter how many dishwashers she kills. That is only dealing with one side effect. Read more
WARNING: This article contains adult content and may not be suitable for younger readers.
Everyone and their grandmother has an odd fascination with my sex life. This is not only offensive, but annoying as all get out. Do you have sex? Yes and it’s good too! I’ve had men ask me with the intention of “fulfilling that need” that is obviously missing in my life. I’m not sure how you missed the baby on my hip screaming in your face to back off. What is wrong with these people? First of all I’m married so you need to respect that. I’d really like to know why it is always some creepy fugly guy who you just know lives in his parent’s basement too. Point blank no! Not even if I was single and you were the last human being on earth, I still would not have sex with you! I have standards for men and they are quite high. Why are you asking about my sex life? Why??? Read more