A Day in My Life With My SCI

A Day in My Life With My SCI

NOTE FROM THE EDITOR: Katy has unfortunately been going through one health complication after another for the last few months. Last night, she shared this update on her Facebook page. It accurately depicts what it’s like to live with a complicated high-level Spinal Cord Injury, and she has graciously agreed to share it with all of you. Please keep her in your thoughts during this time. Read more

I'm Losing My Mind

I’m Losing My Mind

Today’s blog is not a fun or easy one to write. Back in January 2017 I was diagnosed with dementia most likely early onset Alzheimer’s disease and have been going slowly crazy since it happened. I’m only in my late 30’s and had no idea this would ever be a possibility in my life. I feel like my life is over. Read more

With Wheelchairs, Awkwardness Abounds

With Wheelchairs, Awkwardness Abounds

I’ve always wanted to be liked, but after my injury that became a lot more difficult. The reason being – the wheelchair. No one is comfortable around them, not even dogs. Most people and animals have an off-putting reaction to a wheelchair. Typically it’s pity, fear (expressed by children, old people afraid of the speed of my wheelchair, little dogs), annoyance (on the bus, “Oh no it’s a wheelchair again”) or the one that bothers me the most, awkwardness. Read more

Body Shaming People with Disabilities

Body Shaming

Body shaming is a huge problem in our society and it comes in multiple forms. The fact is that no two people have the same shape, nor were we meant to all look the same. You’re too tall, short, fat, thin, dark, light, or have a physical difference. I don’t know why society feels it is okay to make people think there is something wrong with them. Being a cancer patient I am underweight. I’m also naturally extremely small to begin with. When I’m out with my family and we stop to eat I am very particular because I have to be that way. I have celiac disease and eating any gluten will cause my intestines to swell shut from my stomach. I won’t get into the details, but it’s pretty darn gross and extremely painful. This condition will last for days all from eating one cracker or piece of bread. I’m also a vegan and my food options are limited by choice. There is nothing worse than standing in line and hearing someone behind us snickering about how I’m clearly suffering from an eating disorder and need to eat a cheeseburger. No! I’m sorry that my small stature offends some people. I understand that it has been a problem in society for people who are overweight to feel judged and teased. How is anyone fixing the problem by telling me I have an eating disorder? I’ve often been told that men want meat and not a bone. Men want curves on their women. Hey people, I still have curves, they are only smaller. Read more

My Drug Addiction

My Drug Addiction

Drug addiction is not a problem that anyone expects to have to have deal with in life. Nobody wakes up one day and says hey I think today will be the day that I throw my life away. I know that I certainly did not expect this to happen to me, especially with my past, yet here I am today. It’s a tough subject, but an important one. Read more

Power Assist Diaries, Saga 2: Getting Creative When Your Insurance Says No

Power Assist Diaries, Saga 2: Getting Creative When Your Insurance Says No

Nineteen years ago things were a lot different the way my health insurance regarded the kinds of wheelchairs one needs. Back in 1998, I was able to get a supplemental wheelchair, a manual one, in addition to having a power wheelchair. All I needed was a physical therapist’s letter of recommendation, and it was a done deal. Read more

Power-Assist Virgin Diaries Saga 1: Tailwind Power Assist

Power-Assist Virgin Diaries Saga 1: Tailwind Power Assist

For any quadriplegics out there wondering what it’s like to finally try a power assist tech on a manual wheelchair after years of using a power wheelchair, this blog post is for you. I have been using a power chair for over 20 years and am looking into getting a power assist manual wheelchair. The time is nigh to finally add better mobility to my life. Read more

A Letter For The Best Parents

A Letter For The Best Parents

My dad had written a really sweet blog to my sister Taylor and myself about what he wanted us to know about our disabilities and how he saw us as perfect. I thought it would be fun and nice to write one to my parents so they know what they mean to us. My parents are not perfect though because my dad is nuts and my mom is even more crazy. We still love them though. Read more

Planning for the Unexpected While Going Out

Planning for the Unexpected While Going Out

Emergencies are called emergencies for a reason, because you never know when the are going to pop up. You should have a plan and be prepared to deal with the unexpected. I don’t quite understand why it’s called the unexpected, you know sooner or later it’s happening, but it always seems to have a way of happening at the worst possible moments. Perhaps it should be called the moment of “Oh crap! Dear God please not now” instead. Oh it’s happening, whether you want it to or not, so you might as well take a few minutes at a time and get things in order for them. What’s on my must have list as a parent, wife, and caretaker to get out of the house? Read more

My Top 5 Never-Shared-Before SCI Health Pro Tips

My Top 5 Never-Shared-Before SCI Health Pro Tips

The longer you live with a spinal cord injury, it’s inevitable you become an expert in all-things related to paralysis, and this is exactly what’s happened to me. It’s been 24 years, but I’ve learned a lot and shared a lot. Read more