Jessie, Isabella, and I are not typical bloggers. We write a few times a year and will submit 40-75 blogs. I have blogs yet to be published from when we first began writing. If the timeline seems off or I mention only 1 or 2 daughters this is why. EasyStand chooses when to publish the content. We’ve been writing for over 3 years at this point. We do not write on a weekly basis because we do this for charity and our lives are crazy busy. Read more
Every marriage has it’s ups and downs. There is no such thing as the perfect person or the perfect relationship. Having a disability or illness in your marriage can be almost as bad as having an unwanted mistress if you allow it to be one. It can create resentment if you do not talk about problems. It can limit your options for outings and activities if you’re not willing to think outside of the box. We all know the financial stress that it adds to daily life. It can take a perfect day and ruin it if you’re in the mindset to allow it to do that. Read more
What defines a family? Biology? A piece of paper? Perhaps it is an unbreakable bond we call love. No matter what we shall be faced with we will do it together as a family. It’s how we have handled everything else and this situation will be no different. I have no plan and I have no more tears to cry for things which I can not change. I have God and my family, therefore I have all I need in this life to get by with His grace. Read more
My dad had written a really sweet blog to my sister Taylor and myself about what he wanted us to know about our disabilities and how he saw us as perfect. I thought it would be fun and nice to write one to my parents so they know what they mean to us. My parents are not perfect though because my dad is nuts and my mom is even more crazy. We still love them though. Read more
I got the call at the end of my daughter’s second week of her freshman year in college. She told me that her feet and legs had been going numb. Knowing my daughter doesn’t complain when she’s hurt or sick, and that she is very independent, I knew something was not right. Read more
Hi it is Isabella again! Today I want to talk about my experience with therapy. I started going to see a therapist after my mom got sick and it helps me a lot. Sometimes I do not want to talk to my parents about my feelings because I do not want to add to their stress. It hurts a lot when you have a sick mom or dad. I could not do anything to help make her better. I sat and watched her getting sicker from chemotherapy and I did not understand why the medicines made her sick when it was supposed to make her better. I watched my dad get sadder every day because of it. I thought she was going to leave me and I cried whenever I was alone in my room. My dad cried a lot too and that made it even harder for me to think that she was going to get better. Read more
Several months ago, a rather popular blog was posted about what defines a special needs family. While I respect the author’s opinion that special needs should be defined by something in the family requiring additional attention, I was left in complete shock at the acceptance and encouragement that this blog received. How could anyone judge what they do not see at home? How could anyone assume that a child who has lost a parent does not qualify as special needs? Special needs are not only physical but also psychological, and intellectual. Autism is not a physical disability, but would anyone question that autism is not a special need? Autistic children suffer from a form of retardation. That itself is an intellectual disability even when taking away the social aspects. As a psychiatrist who works as a therapist with abused children, a parent who has special needs children, and as a parent that has that child that lost a parent, I found this blog extremely upsetting. I respect the opinion to say there should be a need. However, it should not be assumed that those children do not suffer any number of emotionally driven mental conditions that the mother did not disclose to you upon saying there wasn’t a household disability before her husband’s passing. Read more
Living with an SCI is hard enough right? No apparently it’s not, so let’s add a sick wife to plan and a pack full of small needy children to your life plan and see what kind of NBC comedy develops. It is definitely not easy to manage my own problems and my wife has been my number 1 supporter through this crazy journey. Then it became my turn, and honestly I wasn’t sure that I could handle all of the pressure. My own issues are often enough to push me over the edge of sanity dealing with my PTSD. I’ve already detailed my wife’s journey through cancer and now I will tell my side. Read more
September is Suicide Awareness Prevention Month. In an effort to end the stigma surrounding suicide and mental illness, we will be publishing several first hand experiences and promote information and resources available to those in need. Trigger Warning: This post contains details about mental illness and suicide attempts.
Being happy with yourself is something that everyone struggles with whether or not you have any type of disability. We all have things we’d like to change and how you view yourself is crucial to your own mental health. Mental health issues are quite common in people who suffer from a physical disability with depression over their situation being the most prominent. It’s also quite common in spouses who are also caretakers of their loved ones. Read more
Hi everyone. It is Isabella again and this time I am going to tell you what it is like to live with parents who have disabilities. I want to write this for other kids who might have parents who get hurt or sick and are scared like I was too. I want to write that my dad is not different because he can not walk. I want to write about what it has been like to live with my mom fighting cancer for me and my sister. I really want other kids to know that it is ok to be mad sometimes even if it is at God. I love my mom and dad and want everyone to know how great they are too. I guess I will start with my mom.