Standing Up to ALS

A standing program can help people with ALS and the people that care for them.

Amyotrophic lateral sclerosis, or Lou Gehrig’s disease, is a progressive motor neuron disease causing muscle weakness and atrophy throughout the body. This is the definition, but not everyone fits the definition. Each person with ALS will progress and cope with the disease in their own way. Also, each of their family members, friends and caregivers will react differently to this profound situation. What makes a big difference in a person’s day to day life with ALS is minimizing the secondary adverse affects of the disease, keeping what muscle groups that are available strong and maintaining as much quality of life as each person is capable of. Read more

Diagnoses Resource Compiled by NRRTS

NRRTS (National Registry of Rehab Technology Suppliers) has compiled a list of informational resources about the diagnoses that rehab technology suppliers, clinicians, families, and patients may be interested in learning more about. There are probably many more diseases and conditions that you run into in your practice. To some of you, this information will seem quite basic and may, at best, be a refresher. For others the information will increase the depth and breadth of the knowledge you have about the diseases and disabling conditions faced by your clients. We hope that you find this a valuable learning tool.

Amyotrophic Lateral Scelrosis

Cerebral Palsy

Chronic Obstructive Pulmonary Disease

Developmental Disabilities

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Shartrina Shares how Husband with ALS uses the EasyStand- Video

I ran across this video on Youtube showing Matt, a young man who has ALS- Lou Gehrig’s disease, using the EasyStand Evolv. Shartrina is Matt’s wife and caregiver, and demonstrates how she transfers Matt into the stander and gets him into the standing position. She also has some tips on making it more comfortable, adapting it for use with a ventilator, and more.

 

Matt and Shartrina have an inspirational website called the Matt White Cure ALS Foundation where they have documented their story and are educating others on ALS. I encourage you to check out www.cureals.org to read about their story.

What do you think of the video? Do you know a person who has ALS?