On Recovering My Self Confidence

On Recovering My Self Confidence

I’m talking with a friend who’s an instructor at Parsons School of Design. G teaches a class where students design and create clothing for individuals with various disabilities, so she’s kind of the go-to when it comes to the disabled populace at that school. She mentions a conversation she had with a writer for the alumni magazine.  Read more

Signs Your Child May Have Been Violated

Signs Your Child May Have Been Violated

Warning: This post contains information about sexual assault that some readers may find disturbing. Rates of abuse are higher among those living with disabilities. In an effort to raise awareness about this very serious issue, Jessie has written a special series on sexual abuse that will be published over the coming months.

No one wants to think of a child being abused or violated and yet it happens every single day to thousands of innocent children. Children with a disability are at a higher risk of being victimized because of communication struggles with being non verbal and afraid of doing the wrong thing. It is a horrible thing to think of and it is horrible to live through as a child. There are behavioral warning signs that a child has been abused. It is easy to become stuck in the anger and trauma, but the focus needs to be on helping the child recover a sense of security and normalcy after any traumatic event. Read more

Swimming After A Spinal Cord Injury

Swimming After A Spinal Cord Injury

How many of you still go swimming? I remember my first time in the pool after my accident. It was a liberating yet terrifying experience. Floating free in the water without a wheelchair under me. Look at me I am standing! Logic tells you that you won’t drown in a pool with a life jacket holding you up. Fear of drowning because you know you can’t move your legs tells you something else. I now have a love/hate relationship with our pool. Read more

Does Time Move Differently After a Traumatic Injury

Does Time Move Differently After a Traumatic Injury?

I’ve noticed a lot of weird things happen when you go through a life changing accident, and I’m not talking about the physical side of things (in this case a spinal cord injury). I’m talking about the way the mind wraps itself around such a thing. As the years pile on of living with quadriplegia, one thing seems evident – my walking years truly seem like yesterday, even if they weren’t. And they were 23 years ago for Christ’s sake. Read more

Being Empowered as a Person

Being Empowered as a Person

Hi everyone it’s Isabella! Today I want to talk about empowerment and what it means to me. My mom and dad speak on how to create empowered children a lot, but personally I do not believe many people understand what it means. This is because I see a lot of children and adults with the mindset of a victim. To be a victim is a choice in your mind. You can be a victim of many things or you can make that choice to stand up for yourself and be a survivor. I chose to be a survivor in life. Read more

Dealing with Changes

Dealing With Changes

Dealing with a major life change is a hard thing for anyone to get through despite support. My family has been wonderful in supporting my husband as we walk into new ground. My children feel safe and secure even though they worry about daddy. Read more

Physical Boundaries

Physical Boundaries

When someone I do not trust pushes my wheelchair without asking, it creates a physical sense of intimacy that is not mutual. It’s not easy to communicate this, so I usually use this analogy: “If you wouldn’t pick up an [able-bodied] woman and hoist her over your shoulder out of the blue, you should probably ask before you push my wheelchair.” Some of these things take practice to learn, or there is an element of trust that needs to be established. For example, one incident that I remember vividly is, chasing after my nephew in my manual chair. Next thing I know, a man was behind me pushing my chair. I shrieked, being rather taken aback, and he appeared insulted. He was not aware that he just invaded my space. My wheelchair is an extension of myself. It is my freedom. It is also my personal space. For goodness sake, someone even commented on my chair and stated, “Wow, she looks a little beat up. It’s almost like you live in that thing…” Read more

My Summer Vacation Plans

My Summer Vacation Plans

I have been dealing with a lot of pain recently and have decided to focus on the positive if I can for only a few minutes and talk about my summer vacation plans. I have plans to make a lot of new memories. They may not be remembered by me, but they will live on in my children, my wife, and my family. Read more

This Pain

This Pain

What is pain? Pain is knowing that you will never be worth fighting for in life. Pain is knowing that your life is a lie. Pain is reading how much your dad loves you and having him tell you to go find your new daddy. Pain is seeing your mother cry because your dad has snapped and punched her. Pain is when there is nothing else left to feel because even your anger has been beaten down. I am in pain. Read more

5 Ways to Get Cool FAST with a Spinal Cord Injury

5 Ways to Get Cool FAST with a Spinal Cord Injury

The human body is a marvel. Somehow it ended up with the ability to cool itself via sweat, but when you have a spinal cord injury this ability is turned off. Many are shocked to hear this, but when you have a spinal cord injury, you really can no longer sweat. Not surprisingly, this can cause some pretty gnarly health scares. Read more