I was talking with a mom last week during the IFSP (Individualized Family Service Plan) meeting, about getting her child into a stander now that he is approaching 9 months old. This little boy has increased tone in his extremities with decreased head and trunk control, very limited use of his arms and hands yet. Mom knew about standers from her private therapist; in fact they were also planning to try one in private therapy that same week we discussed standing. Mom was all ready to try one, but wondered what the stander was going to help him do. Read more
Please see editors note at the bottom of this post for important information regarding a researcher mentioned in this article.
I witnessed something extraordinary this weekend while attending the Working2Walk Symposium (sponsored by the United2Fight Paralysis Foundation) that made the entire room buzz with excitement. It was a presentation by Dr. Ken Lee, a neuroscientist from the Mayo Clinic, who spoke about his study using epidural simulation to return function to people with spinal cord injuries. The results they are seeing are so encouraging they are receiving another $36 million for the next phase of their study. Read more
I believe a cure for paralysis is on it’s way. I’m not sure when, but I really believe that a treatment that restores both sensation and mobility is a possibility in the next 50 years, and I didn’t always feel this way. Read more
When something tragic happens like a spinal cord injury, friends and family often feel helpless. It can be difficult seeing someone you love become paralyzed, which is why many come together to form spinal cord injury foundations, either to raise money for research or to help make the quality of life better for people living with SCI. Read more
I’m very excited to write my first official blog! I thought I’d tell you a bit about me and my plans for this blog. Feel free to speak up and tell me what you think and if there are any topics you’d like me to discuss (or not to discuss if you’ve heard it too many times). Read more
I have met so many people who are suffering since I landed myself in this silly wheelchair. When you have a spinal cord injury in the early 21st century two things can happen – you can either move on and take advantage of all the technology that’s available to you – and learn to be happy with not walking again – or you can do everything in your power to keep your body in shape when the cure does arrive, which is a full time job. Read more
After a spinal cord injury, it can be hard to figure out what to do next. After rehab and going home, you have two decisions – do you re-enter life as a wheelchair-user or do you wait until a cure is found? In the spinal cord injury community, this has long been a dilemma even though most of us know what the right answer is (to go out into the world and live again). Many of us just can’t do it.
Years ago I met a person online, a quadriplegic from New York City, who had been paralyzed years prior but never left his house. He was obviously depressed, admittedly so. When I asked him about it, he said he wasn’t going to go out into the world until he was “normal” again and he was willing to wait as long as this took. Read more
When faced with a life-changing injury or diagnosis, what differentiates the individuals and caregivers who keep moving forward with their lives and those who become mired in the situation? Read more
When we ask parents what goals they have for their children in Early Intervention, “walk” and “talk” are the things we hear most frequently, followed by cognitive skills like “ABCs, 123s, colors, and shapes”, and finally functional skills like eating or potty training. Social emotional development feels like an afterthought on our developmental checklist, and I think it is more vague and challenging to latch onto than skills in other areas. Read more
With tax season upon us in the United States, we are just a little more aware of money coming and going, and whether you’re receiving a refund or paying in, you’re suddenly a bit more cognizant of your household’s financial picture. Read more