Power Assist Diaries, Saga 2: Getting Creative When Your Insurance Says No

Power Assist Diaries, Saga 2: Getting Creative When Your Insurance Says No

Nineteen years ago things were a lot different the way my health insurance regarded the kinds of wheelchairs one needs. Back in 1998, I was able to get a supplemental wheelchair, a manual one, in addition to having a power wheelchair. All I needed was a physical therapist’s letter of recommendation, and it was a done deal. Read more

Power-Assist Virgin Diaries Saga 1: Tailwind Power Assist

Power-Assist Virgin Diaries Saga 1: Tailwind Power Assist

For any quadriplegics out there wondering what it’s like to finally try a power assist tech on a manual wheelchair after years of using a power wheelchair, this blog post is for you. I have been using a power chair for over 20 years and am looking into getting a power assist manual wheelchair. The time is nigh to finally add better mobility to my life. Read more

Remembering the Why of Standing

Remembering the Why of Standing

I was talking with a mom last week during the IFSP (Individualized Family Service Plan) meeting, about getting her child into a stander now that he is approaching 9 months old. This little boy has increased tone in his extremities with decreased head and trunk control, very limited use of his arms and hands yet. Mom knew about standers from her private therapist; in fact they were also planning to try one in private therapy that same week we discussed standing. Mom was all ready to try one, but wondered what the stander was going to help him do. Read more

Empathy: A Short Q & A With the Voices in My Head

So, let’s start this off with a nice light discussion of psychosocial issues.

I’m a big fan of Stephen King. Not because I’m a horror junkie, or because of any psychotic tendencies or mental illness that I’ve experienced following the trauma of spinal cord injury (side note: I acknowledge the unfortunate reality of this for some). Rather, I’m a proponent of, and relate with, the terror-evoking author’s acknowledgment of life’s yin and yang. Read more

My Story of my Daughter’s MS Diagnosis

My Story of My Daughter’s MS Diagnosis

I got the call at the end of my daughter’s second week of her freshman year in college. She told me that her feet and legs had been going numb. Knowing my daughter doesn’t complain when she’s hurt or sick, and that she is very independent, I knew something was not right. Read more

Pet Ownership for Those with Disabilities

Pet Ownership for Those with Disabilities

Owning a pet can bring great joy into your life as well as a good bit of responsibility considering that all living creatures require care and have needs to be met. Nonetheless there is a pet out there fit for everyone if you’re interested in an animal companion. Owning a pet also provides hidden health benefits such as lowering your blood pressure. They provide constant companionship and unconditional love. The question becomes what pet is right for you, your home, and your lifestyle. Cats and dogs are the most interactive of the popular pet choices so that is what I will be covering today. Read more

Standing After Hip Surgery

Standing After Hip Surgery

Children with cerebral palsy or increased muscle tone can be at higher risk of developing hip issues; their hips may begin to sublux, or progress to dislocation often requiring hip surgery. The whole process of surgery is scary and full of possible complications. But once that is done, returning to previous activities can add another fear; will my child hurt their hip from doing this? When they have pain, how much do parents need to worry or run back to the orthopedic surgeon to make sure that hip is still ok? Read more

Technicolor Dreams in a Black and White World

Technicolor Dreams in a Black and White World

Sometimes I dream of the perfect blog post. And then I wake up. Read more

1,000 Times I Was Not Human

1,000 Times I Was Not Human

Warning: This post contains detailed information about sexual assault that some readers may find disturbing. Rates of abuse are higher among those living with disabilities. In an effort to raise awareness about this very serious issue, Jessie has written a special series on sexual abuse that will be published over the coming months.

This is by far the hardest blog in my series on sexual abuse that I will write. I already feel the sting of the tears in my eyes and have yet to begin. I can write from a clinical point of view and give you facts, statistics, and talk until I am blue in the face. Today is not one of those days. Today I will allow you once again into my mind which was warped, twisted, and turned into a war zone. There are days I do not know who is the enemy and I am the only one fighting in this war. Read more

Complex Rehab Technology Funding Cuts

The Festive Holiday Season

I used that title sarcastically. I’m not feeling too festive these days. Prescribing wheelchairs and other complex DME for my clients just keeps getting harder and harder. Read more