Technicolor Dreams in a Black and White World

Technicolor Dreams in a Black and White World

Sometimes I dream of the perfect blog post. And then I wake up. Read more

TV’s Vikings’ “Ivar the Cripple” Makes a Present-Day Girl Think

TV’s Vikings’ “Ivar the Cripple” Makes a Present-Day Girl Think

I think it’s fair to assume that before the Industrial Revolution, life for people with disabilities was significantly more difficult. There were no motors, and definitely no electricity to power the wheeled chairs that have been made for “cripples” prior to this golden age. To say it was a hard life was a definite understatement. Read more

Is Electricity the Key to a SCI Cure?

Is Electricity the Key to a SCI Cure?

Please see editors note at the bottom of this post for important information regarding a researcher mentioned in this article.

I witnessed something extraordinary this weekend while attending the Working2Walk Symposium (sponsored by the United2Fight Paralysis Foundation) that made the entire room buzz with excitement. It was a presentation by Dr. Ken Lee, a neuroscientist from the Mayo Clinic, who spoke about his study using epidural simulation to return function to people with spinal cord injuries. The results they are seeing are so encouraging they are receiving another $36 million for the next phase of their study. Read more

Will the Cure for Paralysis Be a Rich-Only Affair

Will the Cure for Paralysis Be a Rich-Only Affair?

I believe a cure for paralysis is on it’s way. I’m not sure when, but I really believe that a treatment that restores both sensation and mobility is a possibility in the next 50 years, and I didn’t always feel this way. Read more

Here Come the Hand Exoskeletons

Here Come the Hand Exoskeletons

Tenodesis splints – the clunky metal splints that help quadriplegics use their fingers. I remember when I was fitted for mine in 1993. It went up to my elbow and wrapped around my first two fingers and thumb; a smart little device that moved my three digits open and closed whenever I pulled up my wrist. Read more

Tiffiny Carlson Speaking at the Morton Cure Paralysis Fund

A Foundation After My Own Heart: The Morton Cure Paralysis Fund

When something tragic happens like a spinal cord injury, friends and family often feel helpless. It can be difficult seeing someone you love become paralyzed, which is why many come together to form spinal cord injury foundations, either to raise money for research or to help make the quality of life better for people living with SCI. Read more

New Redesigned EasyStand Bantam Small and Extra Small

Introducing the Redesigned Bantam Extra Small and Small Pediatric Standing Frames

We have updated and redesigned the EasyStand Bantam extra small and small pediatric standing frames and also introduced new options and accessories. We have combined the best of the Bantam medium and the Zing product line to create the most advanced pediatric sit-to-stand standing frame on the market today. Read more

When the Cure Goes from a Passion to a Mere Indifference

When the Cure Goes from a Passion to a Mere Indifference

I have met so many people who are suffering since I landed myself in this silly wheelchair. When you have a spinal cord injury in the early 21st century two things can happen – you can either move on and take advantage of all the technology that’s available to you – and learn to be happy with not walking again – or you can do everything in your power to keep your body in shape when the cure does arrive, which is a full time job. Read more

ReWalk Exoskeleton or Not

ReWalk or Not?

The ReWalk! Have you seen it? The FDA approved exoskeleton robotic legs for paraplegics to walk again! This system is not made to fit everyone. You must be between 5’3 and 6’5 and up to 220lbs. This leads those who are very tiny or very tall out of luck. It also carries a very hefty price tag of $70,000 for a personal unit! There are other physical requirements as well. You have to be able to use the crutches to balance yourself. That requires good arm strength and shoulder control. Your legs also have to have the strength to carry your own body weight. If you have severe atrophy or osteoporosis than this device is not for you. Between the crutches and casing I wonder what you can do besides sit and stand using this thing. You surely can’t carry anything and walk. You can’t run. The US approved model can’t go up and down stairs. What can you do other than walk? Read more

Cyborg

Are You Ready to Be a Cyborg?

I am astonished. In 1993, at the very beginning of my life as a quadriplegic, I never would I have imagined this is where we’d be with spinal cord injury research in the year 2015. I’m pretty sure I imagined a biological cure, if we would have been blessed with such a thing. And I still wasn’t sure that was ever going to happen even back then. Read more