Posts

Terrific Kids - Cerebral Palsy

Terrific Kids

The conversation in the car was inevitable. I had been waiting on it for almost 12 years —since the triplets began kindergarten as a matter of fact. But expecting a conversation and being prepared for it are two completely different things.

“Mom, am I horrible that I am so tired of people telling me that looking at me reminds them that their problems aren’t so bad?” Mason, 17, asked. “I know they mean it in a good way. ‘You overcome so much, blah, blah, blah,’ but still.” Read more

Individualized Education Plan

The Season of the IEP

We walked into the building holding hands and breathing deep, unsure of what the next hour would bring. It’s that time of the year at school. End of the year testing, planning for the next, and the IEP (Individualized Education Plan) meeting. The last two years, no worries. We had a great team of teachers and therapists who knew Roa and his abilities. They were amazing at including him in the preschool routine and adapting things to suit his needs. But this year, the game has changed. Roa is entering Kindergarten this fall. He is changing teachers, therapists, bus drivers and school building. This IEP meeting was entered with a touch of anxiety and a pinch of apprehension. Read more

Concussion MRI

Concussion 101: The Disabling Effects of a Concussion

Concussions have become the latest health topic in the media. How can parents become educated to recognize a concussion, and know where to go for the best care? How do you prevent disabling symptoms from persisting with a concussion? Knowing what to watch for is the best start to preventing long-term issues. Most concussions resolve themselves in 10-14 days, with a small percentage causing persistent, even disabling symptoms. Experts can’t seem to predict why some people have longer recovery, although the number of concussions a person has experienced can certainly be a factor. Read more

IMG_20130806_092648_208

Physical Therapy Must-Have Equipment: EasyStand Bantam

The Bantam as a Bench

Necessity is the mother of using equipment for other than its originally intended purpose.

When our Early Childhood Education building was being remodeled, things had to be shuffled around and put in storage. We got to play our own little version of the, “If your workplace was on fire (and there were of course no darling preschoolers in the building to consider), what items would you save?” My EasyStand Bantam stander was at the top of the list, of course. Read more

Special Education Classroom

Special Education: A Parent & Former Teacher’s View

Jennifer Thayer is a former Early Childhood Education Teacher with a unique perspective on kids with special needs. Having taught them in a classroom setting, and now parenting a child requiring special education, she knows both sides of the education system. Below is a re-post from her blog, Rojo’s Journey, dated January 16, 2013:

A Letter of Apology

Dear parents of students from my teaching days,

I am writing this to apologize to you. For what, you may ask? Oh, so many things.

I know that I thought I did my best for you and your child. I planned the lessons and adapted them to suit your child’s unique needs. I carried through with the activities and noted progress. I recorded areas of need and goals for the future. I wrote you notes and emails reporting about the day and gave you ideas and “homework” of things which still needed improvement. Conferences, homevisits, and IEP meetings.

But then I went home. Read more

Standing Frame or Gait Trainer

Stander or Gait Trainer?

Peanut butter or chocolate? Both! Stander or gait trainer? Both!
Perhaps I’m indecisive. Perhaps I’m selfish. Perhaps I just know a good thing when I see it.

Unfortunately, as the great philosophers Jagger and Richards wrote, “You can’t always get what you want.” Especially when it comes to insurance funding for durable medical equipment. You have to choose one. Read more

baby1

Spotting Seizures

An email arrived from a patient’s parent the other day about her two-year-old child who, “has been having periods of spaciness at school… like she will just look off…. But yesterday she was play play play chatter chatter chatter then bam suddenly super lethargic and tired…. After about 10 minutes she was back to play play play chatter chatter dance dance all of that.” Read more

Information About being labeled Special Education

“Labeled” Special Education

“So what happens when she turns three? Some other parents say I might not want her placed in Special Education, because it’s so hard to get out once you’re in.” Oh, NO. My heart sinks. Who is saying these THINGS?

I assured this mother that there are certainly avenues parents can take if they wish to discontinue Special Education services. It would require a letter to the Director of Special Education, maybe a couple meetings to ensure the parent truly understands what will and will not be provided for a student who does not have an Individualized Education Plan (IEP), and several signatures, but in the grand scheme, it is not such a big deal.

Why resist Special Education? Read more

You

It’s All About You

After my program recently moved to a new location, some of our favorite sayings were hung in new places. Looking up from my desk, for instance, I see, “No one cares how much you know.” Don’t worry, that’s not the whole saying, just the result of unfortunate bulletin board placement. The full phrase I see when I stand up is:

“No one cares how much you know until they know how much you care.” Read more