PCA Upheaval

PCA Upheaval

For the vast majority of my post-spinal cord injury lifestyle I have had a great deal of stability in regards to PCAs that come in to help me out with my personal cares. As I mentioned in a few years ago, a local hospital used to send home health aides to me every morning while I still lived at home [..}


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The one unexpected benefit of being paralyzed

When you're not "plugged into" your body (this is how I like to describe paralysis), yeah sure, I won't beat around the bush - it mostly sucks. But there's one bizarre benefit I've begun to notice the longer I'm paralyzed - you're not as plugged into your body. [..}


Island of Misfit Toys

Falling in love with my misfitness

The Island of Misfit Toys seemed like the saddest place in the world to me as a kid. It was a place in Rudolph the Red Nose Reindeer (the stop-animation cartoon) where toys that were broken or unwanted were sentenced to live out the rest of their days. Toy segregation. Not cool man. [..}


Life After SCI: The Tiffiny Carlson Story

Our latest video in the Life After SCI series is live. The Tiffiny Carlson Story is chock full of great tips for those with recent spinal cord injuries, but will be just as relevant for veteran wheelchair users. Tiffiny tells it like it is and doesn't shy away from topics, check out the video - it [..}


cleaning, disabilities and wheelchairs

Spring cleaning – a necessary evil

Dust mites dwelling in cat hair under my bed, a half eaten banana in my fridge, keeping one too many items on my kitchen counter ('clutter' apparently), spring cleaning (thanks to help from my mom and sister) is a necessary evil I can now scratch off my 2013 check-list, and boy it was not a pretty [..}


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Regaining Lost Eye Contact

I used to have good, if not great, eye contact when talking to people. That skill could be traced all the way back to middle school and high school when I always got high marks for good eye contact with my audience during graded speeches. When talking to people I tried really hard to make good eye [..}


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What scares you?

Most people are afraid of death, but for people with disabilities....not so much. I don't know about you but as someone with a disability, I have plenty of other fear-inducing things to worry about. And it's hard not to let these fears come into play. When you rely on so many factors outside of [..}


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The Hidden Responsibilities of the SCI Lifestyle

The disability world barely touched my life before I sustained a spinal cord injury at 17. Up until then the only wheelchair users I came across were a lady with cerebral palsy, who very sporadically showed up for Sunday morning church services (as I mentioned in this post) and a middle/high school [..}


Spinal Cord Injury Website Has Tips for Wheelchair Users

Archive of Priceless Wheel-life Tips

So I got a Slap Chop for Christmas - a very nifty sharp cutting machine that lets you cut up anything in mere seconds, and without finger function (thank you chef boyfriend!). While I love this awesome gadget, I really wish I had had something like this years ago. This contraption would’ve [..}


Sadness, 1931, by Pál Pátzay. Hungarian National Gallery

Surviving Permanent Loss

What a horrible time of year for the Sandy Hook Elementary School shootings to occur. Christmas already has the uncanny ability to unhinge our emotions - they remind us of Christmases past, loved ones who are no longer with us. It can be tough. My heart truly goes out to the families of those who [..}