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Friends having coffee

The Lonely World of Special Needs Parenting

Only Human

The ad in the paper reads “Girls Night Out”. Special promotions, door prizes, dinner specials for you and all your gal pals. Sounds like fun! If I only had some pals.

I used to have friends. High school, college, even through my years as a teacher I had numerous comrades. Yet, as it goes for most, you relocate, gain different interests, or change in the time of life. Eventually some friendships fade.

I have friends I keep in touch with via Facebook, occasional phone calls, and annual Christmas cards. A couple times a year, I am invited to a birthday party, a dinner outing, or an “I’ll-host; you-buy-so-I-can-get-free-stuff” party. That is the extent of my friendships right now. Period. Read more

Roa Playing

Toys for Kids with Special Needs

Toy Land Made Easy

Finding toys that work for a child with motor delays is a tough task. Like other parents, you cannot just head to your local superstore and pick up any old toy on the shelf. Some parents try to do just that, set the toy in front of their child, and hope that they can figure out how to play with it in their own way. Other moms and dads buy a toy they themselves would like for entertainment and play while the child watches. Read more

Standing Frame or Gait Trainer

Stander or Gait Trainer?

Peanut butter or chocolate? Both! Stander or gait trainer? Both!
Perhaps I’m indecisive. Perhaps I’m selfish. Perhaps I just know a good thing when I see it.

Unfortunately, as the great philosophers Jagger and Richards wrote, “You can’t always get what you want.” Especially when it comes to insurance funding for durable medical equipment. You have to choose one. Read more

Hippotherapy

Hippotherapy

At some point, I’m pretty sure just about everyone has wished for a pony. Kids of all ages with mobility limitations are probably no exception. A right-sized companion with four extra-strong legs? Yes, please.

Aside from being cute and cuddly, or sleek and shiny, or however the horses of your dreams look, they are able to provide functional benefits on multiple levels via therapeutic horseback riding, or hippotherapy. Read more

Children's Waiting Room

Sit and Stay

The waiting room.

The chairs, outdated magazines, a few mismatched toys, dog-eared books, and the seemingly endless time spent practicing… the art of patience.

For a tired, solo mother, the waiting room can be welcoming. A place to catch a breath, take a few uninterrupted sips of joe from the travel mug, and browse a magazine to gaze at the world of Hollywood starlets, so very far from the reality of this mother’s life.

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baby1

Spotting Seizures

An email arrived from a patient’s parent the other day about her two-year-old child who, “has been having periods of spaciness at school… like she will just look off…. But yesterday she was play play play chatter chatter chatter then bam suddenly super lethargic and tired…. After about 10 minutes she was back to play play play chatter chatter dance dance all of that.” Read more

School Buses

Back to School, Back to Feeling Like You Don’t Fit In?

It’s so not easy going back to school after doing all the things you love in the summer. It can be super hard going back, especially if you use a wheelchair.

Maybe you’re super lucky and you go to a school where everybody is cool and could care less if you use a wheelchair. Schools like this really do exist. I’ve heard of them, but my school was definitely not one of them. When I had to go back to school after breaking my neck, it was one of the hardest things I ever had to do. None of my friends knew what to say to me or how to act around me. Suddenly I was all alone. Read more

Pediatric Dynamic Standing Frame, active standing for kids.

Lifting Spirits – Article on Mobile and Dynamic Standing for Kids

It’s no secret that kids love to play and move about, and kids with mobility challenges are no exception! A child’s desire to play and interact with family or friends should be considered when prescribing a standing program. Mobile and dynamic standers can open up a world of possibilities for kids, not only physically but emotionally and socially as well. Physical therapist, Karen Good, explains these distinct types of standers and their immeasurable benefits. Read more

Special Needs Dads

Involving Dads in the Life of Their Special Needs Child

Fathers play an important role in their child’s development. Research studies show that dads not only challenge their children to do more, but also help build language skills. Many dads have wonderful relationships with their children, but some dads have difficulty connecting with their child who has a disability. In this article we’ll learn some of the reasons why this happens plus a few strategies for getting dads to take a more active role in their child’s life.

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