Your participation will help partnering consumer groups advocate most effectively on behalf of all wheelchair users so that we receive properly fitted wheelchairs, and all necessary accessories and related services to fully participate in an active, healthy, community lifestyle.

Survey responses will be strictly confidential and data from this research will be reported only in the aggregate to the partnering consumer groups. Information will be coded and will remain confidential. Participants will have the opportunity to request further contact, but names and contact information will never be shared or included with the results of the survey.

The survey is being conducted by National Spinal Cord Injury Association in partnership with United Spinal Association, Paralyzed Veterans of America (PVA), National Multiple Sclerosis Society, United Spinal Association, United Cerebral Palsy Association, Muscular Dystrophy Association (MDA) and Paralyzed Veterans of America (PVA), and The ALS Association. The initiative has also sought and accepted input from respected clinicians and from members of industry groups including American Association for Homecare (AAHomecare) and the National Coalition for Assistive and Rehab Technology (NCART).

The group intends to present this information to policymakers on Capitol Hill and at CMS, in an effort to address the fact that Medicare has limited or no coverage and payment for many such items impedes consumers’ abilities to fully engage in their communities and realize the highest possible quality of life.

If you have questions about the survey, contact info@spinalcord.org.  Did you take this survey?  If so, tell us what you thought about it.

This is a guest post on the EasyStand Blog by Margaret Mazzone, PT.  Margaret Mazzone is a pediatric Physical Therapist working on her Ph.D. degree in the Dept. of Rehab Science.

Are you a therapist that recommends standing devices for children as part of your clinical practice? If so, you are invited to participate in research that is being conducted through the Department of Rehab Science at the University at Buffalo, State University of New York.

This investigation will explore current practices and decision making, service delivery, and issues of acquisition and use of stander devices with children.  This information is valuable to clinicians, manufacturers, and insurance payers, and will help to identify future research needs. This research is much needed given the limited research in this area and the current health care climate. Participation involves completing an electronic survey which will take approximately 20 minutes of your time.

This research is much needed given the limited research in this area and the current health care climate.

Contact Margaret Mazzone, PT, MS at mmazzone@daemen.edu or (716) 829-6726, c/o Dr. Jim Lenker, with any questions or concerns. The research is approved by the SBS Institutional Review Board at the Univ. of Buffalo, SUNY.

Access the Survey & Find More Information

Are you currently conducting or interested in conducting a research study on standing? Did you participate in this survey?